Update – June 26th, 2013

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I had the chance to catch up with Seth and Chelsea for a bit and wanted to give an update on Jubie currently.

So far the worsening of her symptoms, whether due to the necrosis or any tumor growth, seems to have stopped, which is great! Praise God! As of now Jubilee cannot walk as her balance is very poor and she has a lack of control over her movements, and she has had trouble with here eyes and she often must crawl from one place to the next. But her attitude is cheerful and happy and she is full of energy as well!

Todd and Nadine bought her a tricycle which, since it does not require balancing, has enabled her to be very mobile and aid in exercising to fight the affects of the steroids, and she loves to zoom around and ride it all over. She can’t walk but she certainly can ride, so it has been immensely helpful!

They are continuing to seek God as to what possible options there are in the realm of treatments. Currently they are driving to nearby Farmington to meet with a lovely Christian woman who is a reflexologist. The foot zoning reflexology treats the nerve endings in the body and the visits have had good results. Her eyes are looking better and they are only a 2 treatments into the course of 7 visits, so Lord willing it will be very helpful. I will update as soon as I know or hear more.

They also said that the community of friends and family has continued to be such a huge blessing and help to them and they are so thankful for your ongoing prayers. Many of their friends in Paonia have been dropping by to pray for Jubie as well which has been a very encouraging blessing as well.

One thing that could really use prayer as well is that Seth, Chelsea and Isaac all have been struggling with very severe allergies/hayfever which alone can impede daily life, not to mention coupled with the current situation. Please pray that the Lord would provide relief for them!

They are continuing to take each day at a time, starting every morning with taking communion together and committing their day ahead to Jesus. Seth said that God has been teaching them to enjoy each day and not to be anxious for tomorrow. It is certainly challenging and has been fraught with tears at times, but God’s peace has been comforting and protecting them throughout. Your prayers have been a huge encouraging factor too, and we are all so very thankful for everyone of them!

If you would like to donate to help support Jubilee please click HERE. 100% of your donation goes directly to supporting her and her family as they battle this DIPG tumor. Thank you so much and may God bless you.

Jubie getting around on her tricycle.Image

June 11th, 2013 – Update

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Got to speak with Chelsea and Seth recently and have gotten an update on the situation and how Jubie is doing.

First of all she is off of the steroids currently, which is good, and she also has been in very high spirits, with a zealous joy despite the circumstance and lots of energy. Seth told me that when they ask her how her eyes, or anything, is feeling it’s either “good” or “great”, and if anything is bothering her she just sweetly replies, “I don’t want to tell you” or will change the subject to something happy. So despite not necessarily doing physically better, she is being very upbeat and absolutely joy filled.

Right now they are trying to determine whether the symptoms, which have been worsening gradually, are due to the DIPG tumor or from the radiation’s side effect of necrosis, as the symptoms can be very similar. As of when I spoke with them Jubie is having a hard time maintaining her balance and her eyes have been in pain and had trouble focusing and blinking. Due to her lack of balance they have not been able to get out and hike or bike ride, but they have found that she absolutely adores swimming and they have been going to the Glenwood Springs hot springs where she hops into her little inner tube and kicks/paddles all over the pool for hours. So that has been a great thing to fight the lingering side effects of the steroids, as she can easily get lots of exercise in the pool and not have to worry about balance.

Please keep praying for enduring peace and for God’s healing hands upon Jubilee and her family. Chels told me that it has been a tough week for them all seeing her balance fail, but that Jubie’s joy has also been such a blessing, challenge and inspiration. They are continuing to eat very healthy, raw, cancer fighting foods and giving Jubie natural remedies to fight swelling and the cancer. The people and prayers surrounding them have also been a huge encouragement and source of strength for them. Thank you all so much for your support and love, it is of more value than we can ever express!

I will continue to try to keep you all updated as often as possible and as quickly as I can. Thank you for your encouraging comments and most importantly your continued prayers for Jubilee Grace.

If you feel called to donate to Jubilee please click HERE. 100% of your donation goes directly to supporting them through this time and the costs involved. Thank you so much and may God richly bless you!

 

May 6th, 2013 – Roadtrip Update

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I just received an email from Seth and Chelsea and it sounds like they have been having some super fun quality times together along the California coast.

Make-A-Wish ended up providing them with a wonderful time in southern California, which was a blast for Isaac and Jubilee. Jubie’s favourite parts were getting to pet a dolphin, making sand castles and getting to go on the Pirates of the Caribbean ride at Disney Land. It was a very memorable and fun time together.

Jubilee has remained on steroids since the 19th or so, but Seth and Chelsea would really like to wean her off of them at some point, and are trying with various natural herbs, as the steroids can be quite damaging over a long period. But she has been doing very well on them, returning very much to herself. The doctors at Children’s in Denver really want to do another MRI when they head back to Colorado, and they are almost certain that her symtoms returned as an effect of the radiation called necrosis, which in itself can be deadly. They are recommending a treatment that is intravenous and every 2 weeks, and that without the Avastin treatment she may need to be on the steroids indefinitely. The doctors also are very curious to see if the tumor has shrunk, or if there are any other effects that may have occurred. Jubilee has an appointment on the 24th and they would very much appreciate prayers for wisdom in that decision.

They are continuing to pray about further holistic/natural remedies, some of which are offered through the Issels Clinic in Santa Barbara. But Chelsea said that their mainstay of hope, day by day, is “continuing to hold onto the truth that only Jesus can treat her and only through Him can we stumble upon the right one(treatment)“. Please pray also for guidance and wisdom in choosing one, or any, of the possible treatments they are looking into.

They are hitting the road again today, heading north towards Redding and Bethel Church to meet some friends who are organising a prayer team to pray for Jubilee. This past week they have been camping along Big Sur and Highway 1, seeing whales, exploring coves and even taking a swim in the brisk Pacific before heading to Santa Cruz and hiking. After that they plan to head back towards the coast and go north up to Newport, Oregon to meet with Todd and Nadine.

God has been very good and Jubilee has been doing really well so far, and has been having an absolute blast on the road trip. Isaac has been such a great big brother too, loving on her and always playing together on the beach, chatting, building sand castles, exploring and playing games. Chelsea said that she can tell Jubie is feeling good because she is singing all the time, and last night was singing Rare Earth’s “I Just Want To Celebrate” when she was going to bed! Chelsea also said that Jubilee knows so many people are praying for her and talks about it all the time and they are all so thankful for your continuing prayers.

If you feel directed to help Jubilee and her family financially, please click HERE to make a donation. 100% of your donation goes directly to them and will continue to enable them to take advantage of every day together while they seek the Lord in this very hard situation. Thank you and God bless.

April 12th, 2013 – Update

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Just a very short update today.

Seth, Chelsea, Isaac and Jubilee all headed out safely and are going to be arriving in Santa Barbara tonight. Accommodation has graciously been provided for through a man at Calvary Chapel Santa Barbara, in the form of a rental home that was vacant for the dates they needed, praise God!

Jubilee’s treatment begins on Monday morning and I believe only lasts that week. After which they will do a bit of family road tripping/camping along the beach. Please pray that the scan they are going to be doing to see if the treatment will be affective will be a positive result and that they can treat the DIPG tumour with it.

I received a text from Chelsea today that said Jubilee is struggling a bit more than she has since the radiation, so please take the time to stop and intercede in prayer on her behalf today! Also pray for protection over their trip and that they will be able to have an awesome family time together along the coast, filled with the peace of Christ.

“I, The Lord, am your healer.” – Exodus 15:26b

If you feel led to help their family financially, please click HERE to make a donation via card or check. Thank you so much!

April 9th, 2013 – This Past Week

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This past week has held a lot. A lot of research, phone calls, connections, plans and prayers. Seth and Chelsea are feeling God’s leading and have settled on some plans for Jubilee and their family in the coming weeks.

After Easter everyone except my family (Rachel, Libby, Adi and myself) and my parents (Todd and Nadine) headed back to their homes and Seth and Chelsea got back on the confusing journey of delving into and sorting through the plethora of cancer research and treatments. One very apparent thing is that DIPG cancers/tumors are so rare that they have received very little research with basically zero progress in treatments or survivability for many years. There are a few alternative options that have been shown to attack cancers effectively and if used on Jubilee would be the first time they have been tried against DIPG. Which could be a breakthrough in fighting DIPG, but also carries the possibility of them being ineffective. But the very positive side of the treatments that they are looking at is that they are simple, non-invasive, nor riddled with horrendous side effects which would mar Jubilee’s quality of life. Seth and Chelsea have felt the Lord leading them to an alternative cancer treatment center in California, near Santa Barbara, and continue, as always to be so thankful for the massive amount of prayers for Jubilee and their family that have been relentlessly put before God by so many amazing people. Please continue to pray for them, for direction and clarity in their path and for great wisdom and peace that passes all understanding.

Right now, with the decision to head to California, they are packing and readying to take a family road trip, leaving the 10th. Their intent is to head to Santa Barbara for Jubie’s treatment, which should only last a few days, and then to make the rest of the trip, however long it lasts and whatever direction it takes them, to celebrate together as a family and enjoy every moment they have. One of Jubilee’s greatest wishes was to go to the beach, so they plan on camping on or very near the coast for at least awhile and making wonderful memories together.

Obviously their trip and its duration depends on Jubilee’s condition, which since the radiation treatment, has been quite good. Today I spent the day with Seth running to a doctor appointment in Ridgeway, followed by other last minute errands in Montrose and Delta. We got to take Jubilee and Liberty with us and we had an awesome time all together, as well as taking our little girls out to a Chinese place for lunch, which was priceless. Jubilee is her sweet, beautiful self and laughed and smiled all day, but Seth noticed that she tended to have a bit of trouble blinking and would sometimes look sideways when walking to keep herself straight, which he said reinforces all the more that they need to go, do the treatment and be a family as much as possible. Please don’t cease to be praying for Jubilee and her family as they head out on this trip. Pray against confusion and stress. That they would all be unified and covered by God’s peace and protection and that this treatment, Lord willing, would be positive and that it will effectively combat and destroy Jubilee’s tumor.

We also wanted to say a HUGE thank you to all of those who were out and participated in the Ride for Jubilee in Colorado Springs! The day after the event Mike and Leah, who were the coordinators, made a quick trip over to Paonia to see Jubie and they gave us a run down of how well it all went. We want to thank you all for your participation and the funds that were raised to help with the expenses of Jubilee’s upcoming treatment. Everyone of you who was involved at any level directly impacted, and helped, Jubilee and her family massively. We cannot thank you enough!

Please continue to share Jubilee’s story and keep her in your prayers, on prayer chains and let your churches know. And remember, “pray one for another, that ye may be healed. The effectual fervent prayer of a righteous man available much.” (James 5:16b)

The photo at the top of this post was taken by Liberty while we had our Chinese lunch (photo below), and it also was a pretty frigid winter day today, leaving Paonia with about 4-5 inches of snow, so we had a bit of a snowball fight while running errands. 🙂

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If you feel directed to donate financially to help offset the expenses that their family is facing please click HERE to make a contribution. We are extremely grateful for your support and any amount will help Jubilee and her family face the future. 100% of all contributions goes directly to them. Thank you so much and may God bless you.

April 2nd, 2013

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This past week has been quite busy, but in a very good way. Lots of family has come to visit and we had a wonderful Easter together at Crow Farm, remembering that Christ is risen and in Him is abundant life!

Jubilee has been returning to her normal self, no longer needing naps in the day and being more talkative, energetic and laughing a lot. She is also nearly finished with the steroids! Upon hearing how she is acting, the doctor at Children’s Hospital in Denver was very pleased and said that the radiation must’ve acted on the tumour as they hoped and that 6-12 months without major symptoms of the DIPG are very possible, which is a blessing. And we are continually praying for complete restoration and healing and that those symptoms never return. She has lost most of her hair where the radiation was applied and has been wearing colourful scarves and hats for the past few days. But it has been great to see her playing with her cousins and at the park or riding on the tag-a-long bike with Seth, which is a huge difference from when we first arrived.

Seth and Chelsea have spent hours on the phone this week talking to alternative specialists and researching possible treatments. Through lots of prayer and research they have narrowed it down massively and are praying about pursuing one or two avenues and would appreciate your ongoing prayers for wisdom and guidance from the Lord as to what path to take.

Chelsea’s parents, Mike and Cyndi, came on Thursday and stayed for the Easter Weekend, and Leah and Wes (Chelsea’s brother, wife and kids) also came on Friday just for a day. And with so many hands converging on them we had a ‘get practical stuff done’ day, which included burning irrigation ditches, thoroughly cleaning their house of dust and other allergens, running junk to the dump, fixing some plumbing etc. It was a very busy day, but a blessing also to have many hands to make light the work so that Seth and Chelsea wouldn’t have to worry about it and can just focus on Jubilee, their time together and her treatment. Chelsea also boiled eggs and we painted and dyed Easter Eggs in the evening all together.

On Saturday Seth and I took all four kids out for the day on bikes and to the parks in Paonia and had a really fun time picnicking and playing in the sun. Rachel and Chelsea headed to Hotchkiss and Delta to search out sugar free Easter treats as Jubie is completely off of sugar, and managed to find some great little goodies to fill the eggs.

The Burress family and Nana and Papa Weber all arrived Saturday night and for Easter Sunday we all greeted the morning with a sunrise service at and bonfire at Crow Farm. Some of the wonderful friends that they have in Paonia also came to share in the celebration of Christ’s resurrection and this time of Jubilee. It was a hard, but sweet time given the circumstances, and we know that Jesus is alive and holding precious Jubilee in His tender hands. Seth shared for a short time on the situation and what Jesus had been speaking to Him through this ordeal, and how He had made clear what is truly important. The bonfire he said was particularly symbolic to him as a picture of God burning away the petty things that distract to reveal the important things of life.

The rest of the day we spent together, sharing food and fellowship outside in the beautiful sunny day. After we ate, Seth, Mike, Jacob and I hid Easter eggs for the kids and they had a great time searching for them and playing with the little goodies in the eggs and eating the healthy treats that Chelsea and Rachel put in them.

The local Lutheran church held a donation/fundraiser breakfast for Easter and there have been multiple other fundraiser and support events around Paonia, including a pool tournament and a raffle at the local Subway. It has been very cool to be here and see first hand the amazing amount of support and care being given to their family during this time. Seth has mentioned many times how blown away they have been by the love and prayers from so many people and how it has encouraged them. Thank you all so much for your ongoing prayers and support for them, they are so thankful and blessed by the huge amount of people standing with them in the face of such a difficult fight.

Apart from the Easter weekend, we have all been respecting as much as possible their family time, only visiting midday, between 11-4 or so, so that they have time just as a family with Jubie and Isaac. They are taking each day as it comes, and it is so incredibly evident that Jesus is fully sustaining them. It is a huge blessing that Seth is not having to work through this time as well, and can spend as much time with his family as he can. Thank you all for your financial support that has made that possible. Enabling him to take this time with Jubilee, Chelsea and Isaac means more than you can ever know. Thank you so much and may God bless all of you in return for your generosity.

Jesus is truly alive, and that reality has hit all of us at a new level through this past month. He is comforting and sending His peace over Jubilee and her precious family, and for that we are so thankful. Your prayers and support have meant, and continue to mean, so very much to them and we are ever thankful for you as well.

If you feel directed to support Jubilee financially please click HERE. Thank you and God bless.

March 21, 2013

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It was Seth’s birthday and we all (Todd, Nadine, Penny, Rachel, Adi & Libby, and I) had a little party together with Seth, Chelsea, Isaac and Jubilee and tried to keep it low key and relaxed. Jubilee was doing really well, just tired by the afternoon as she didn’t have a nap. Her eyes have been tracking very well, and blinking almost normally and her balance is also very good.

Some of Seth and Chelsea’s lovely friends dropped by with holistic/natural and medicinal foods for Jubilee and a lovely squash pie for Seth’s birthday. It was so sweet of them and all the foods are very nutritious and cancer fighting, which we hope will continue to help Jubilee as she weans off the steroids and fights the DIPG.

They have been having lots of fun together and Jubilee has been smiling and laughing a lot, which is great to see. Please continue in prayer for her complete healing and we are thankful for the awesome support and love people have been giving them.

Today is a very relaxed day, with Seth and Chelsea spending family time together with Isaac and Jubilee. We all may meet up later, if Jubie is feeling up to it, at a friends farm who has baby pigs and baby goats.

Thank you again for all your love and prayers and we are so blessed by all the encouragement and intercession on Jubilee’s behalf. Thank you!

If you feel inclined to help support Jubilee financially, please click HERE to donate to their family. We are ever thankful for the many of you who have blessed them so abundantly during this very difficult journey. May God bless you in return!

March 18th, 2013

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Today is beautiful and sunny in Paonia and Seth, Chels, Isaac and Jubilee have gone out for a bike ride together. Jubilee looked really good today and was very excited to go out riding. God also placed a gorgeous rainbow over the mountain right outside her window.

He is in control and His peace certainly passes all human understanding, and we praise Him for it and the daily blessings He has given. Please keep praying and sharing Jubilee’s story to whatever prayer chains and churches you know. As always we are so thankful for your continued support and love towards Jubilee. God bless you all.

If you have the desire to donate and help support Jubilee please click HERE to visit the ‘Donate’ page. Thank you!

Update for March 16-17th, 2013

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Seth and Chelsea arrived home on the 16th safe and sound. Jubilee was doing quite well and spent the day doing art, playing in the yard and riding the zip line that Seth built on their property. She is much more herself being home and they are all relieved to be back in Paonia.

The community of Paonia, which has been absolutely incredible with their love and support for Jubilee, organised a wonderful fundraiser/benefit at The Creamery Art Gallery and Seth attended it, but Chelsea stayed home with Jubilee to rest, and he said to me that he was completely blown away by the massive amount of love and faith and caring that people have shown and he said he could barely take a step without being hugged, loved and given encouragement. He wanted to make it known that they are extremely thankful. Seth also said that he received lots of very good information on fighting glioma tumours and cancer with natural methods.

On the 17th a friend of theirs who is a very learned nutritionist spent a large portion of the day working out an extremely healthy, nourishing diet for their family. She is also helping Seth with his allergies and severe sinus problems.

Jubilee had a good day, but was a bit tired and somber. She has had lots of love, gifts and kindness from their friends in Paonia and they are all very thankful and blessed by it. They wanted to let everyone know that they are so blessed and grateful for your amazing prayers and support. It means so much to all of us.

If you feel directed to donate to Jubilee to help them during this situation, please click ‘Donate’ at the top of the page or click HERE.

Update for March 9th

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Denver got blanketed in snow and all of Chelsea’s brothers and their families made it without incident, so thank you all for your prayers! They all spent most of the day together with Jubilee, Seth, Chelsea and Isaac at the Ronald McDonald house. Jubilee did really well, but tires easily and had a long nap, but after which they all got to go bowling together. Two of Chelsea’s brothers have new little babies and Isaac and Jubilee both were very excited to meet them and loved seeing them. They all had a wonderful time with the family. Jubilee, Isaac and their cousins loved bowling and dancing to music at the bowling alley, eating french fries and just hanging out together. After the bowling Seth, Chelsea and Jubilee headed back to the Ronald house for the dinner, as Jubilee loves the dinners that they serve. Isaac stayed with the rest of the family to bowl and hang with his cousin Hunter.

The Ronald McDonald house in Aurora, very near the Children’s Hospital, is an amazing facility and is much like a nice hotel, catered towards children, and has really blessed them, especially Jubilee. The convenience alone of being able to stay so near the hospital has also been huge. The facility has large common areas for play and for spending family time together. Dinners are served by volunteers each night which keeps things low key and as stress free as possible.

Jubilee has been doing very well leading up to the radiology. They moved the port with the pick line to her heart for anesthesia to her upper arm with no trouble, and it makes the anesthetic take effect very quickly and with less pain. Everything is set for radiology on Monday.

Please keep Jubilee in your prayers. We are praying for God’s healing hand to be on Jubilee and peace and comfort on their family.

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