This past week has been quite busy, but in a very good way. Lots of family has come to visit and we had a wonderful Easter together at Crow Farm, remembering that Christ is risen and in Him is abundant life!
Jubilee has been returning to her normal self, no longer needing naps in the day and being more talkative, energetic and laughing a lot. She is also nearly finished with the steroids! Upon hearing how she is acting, the doctor at Children’s Hospital in Denver was very pleased and said that the radiation must’ve acted on the tumour as they hoped and that 6-12 months without major symptoms of the DIPG are very possible, which is a blessing. And we are continually praying for complete restoration and healing and that those symptoms never return. She has lost most of her hair where the radiation was applied and has been wearing colourful scarves and hats for the past few days. But it has been great to see her playing with her cousins and at the park or riding on the tag-a-long bike with Seth, which is a huge difference from when we first arrived.
Seth and Chelsea have spent hours on the phone this week talking to alternative specialists and researching possible treatments. Through lots of prayer and research they have narrowed it down massively and are praying about pursuing one or two avenues and would appreciate your ongoing prayers for wisdom and guidance from the Lord as to what path to take.
Chelsea’s parents, Mike and Cyndi, came on Thursday and stayed for the Easter Weekend, and Leah and Wes (Chelsea’s brother, wife and kids) also came on Friday just for a day. And with so many hands converging on them we had a ‘get practical stuff done’ day, which included burning irrigation ditches, thoroughly cleaning their house of dust and other allergens, running junk to the dump, fixing some plumbing etc. It was a very busy day, but a blessing also to have many hands to make light the work so that Seth and Chelsea wouldn’t have to worry about it and can just focus on Jubilee, their time together and her treatment. Chelsea also boiled eggs and we painted and dyed Easter Eggs in the evening all together.
On Saturday Seth and I took all four kids out for the day on bikes and to the parks in Paonia and had a really fun time picnicking and playing in the sun. Rachel and Chelsea headed to Hotchkiss and Delta to search out sugar free Easter treats as Jubie is completely off of sugar, and managed to find some great little goodies to fill the eggs.
The Burress family and Nana and Papa Weber all arrived Saturday night and for Easter Sunday we all greeted the morning with a sunrise service at and bonfire at Crow Farm. Some of the wonderful friends that they have in Paonia also came to share in the celebration of Christ’s resurrection and this time of Jubilee. It was a hard, but sweet time given the circumstances, and we know that Jesus is alive and holding precious Jubilee in His tender hands. Seth shared for a short time on the situation and what Jesus had been speaking to Him through this ordeal, and how He had made clear what is truly important. The bonfire he said was particularly symbolic to him as a picture of God burning away the petty things that distract to reveal the important things of life.
The rest of the day we spent together, sharing food and fellowship outside in the beautiful sunny day. After we ate, Seth, Mike, Jacob and I hid Easter eggs for the kids and they had a great time searching for them and playing with the little goodies in the eggs and eating the healthy treats that Chelsea and Rachel put in them.
The local Lutheran church held a donation/fundraiser breakfast for Easter and there have been multiple other fundraiser and support events around Paonia, including a pool tournament and a raffle at the local Subway. It has been very cool to be here and see first hand the amazing amount of support and care being given to their family during this time. Seth has mentioned many times how blown away they have been by the love and prayers from so many people and how it has encouraged them. Thank you all so much for your ongoing prayers and support for them, they are so thankful and blessed by the huge amount of people standing with them in the face of such a difficult fight.
Apart from the Easter weekend, we have all been respecting as much as possible their family time, only visiting midday, between 11-4 or so, so that they have time just as a family with Jubie and Isaac. They are taking each day as it comes, and it is so incredibly evident that Jesus is fully sustaining them. It is a huge blessing that Seth is not having to work through this time as well, and can spend as much time with his family as he can. Thank you all for your financial support that has made that possible. Enabling him to take this time with Jubilee, Chelsea and Isaac means more than you can ever know. Thank you so much and may God bless all of you in return for your generosity.
Jesus is truly alive, and that reality has hit all of us at a new level through this past month. He is comforting and sending His peace over Jubilee and her precious family, and for that we are so thankful. Your prayers and support have meant, and continue to mean, so very much to them and we are ever thankful for you as well.
If you feel directed to support Jubilee financially please click HERE. Thank you and God bless.