To our friends and family…

muralThis mural, in downtown Paonia, was just completed last week by Seth. It is a beautiful reminder of Jubilee and also of the incredible outpouring of love and support from the community in Paonia and further afield.

Seth and Chelsea wanted to let everyone know that it is a ‘thank you card’ for the prayers and love that they were, and continue to be, wrapped in by such amazing people. The hand of Jesus has been so continually evident, despite such a tragic situation, and we wanted to thank you all again for your part in this chapter and your continued prayers for them as they face the days ahead.

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Photos by Teya Cranson

 

 

Update – June 26th, 2013

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I had the chance to catch up with Seth and Chelsea for a bit and wanted to give an update on Jubie currently.

So far the worsening of her symptoms, whether due to the necrosis or any tumor growth, seems to have stopped, which is great! Praise God! As of now Jubilee cannot walk as her balance is very poor and she has a lack of control over her movements, and she has had trouble with here eyes and she often must crawl from one place to the next. But her attitude is cheerful and happy and she is full of energy as well!

Todd and Nadine bought her a tricycle which, since it does not require balancing, has enabled her to be very mobile and aid in exercising to fight the affects of the steroids, and she loves to zoom around and ride it all over. She can’t walk but she certainly can ride, so it has been immensely helpful!

They are continuing to seek God as to what possible options there are in the realm of treatments. Currently they are driving to nearby Farmington to meet with a lovely Christian woman who is a reflexologist. The foot zoning reflexology treats the nerve endings in the body and the visits have had good results. Her eyes are looking better and they are only a 2 treatments into the course of 7 visits, so Lord willing it will be very helpful. I will update as soon as I know or hear more.

They also said that the community of friends and family has continued to be such a huge blessing and help to them and they are so thankful for your ongoing prayers. Many of their friends in Paonia have been dropping by to pray for Jubie as well which has been a very encouraging blessing as well.

One thing that could really use prayer as well is that Seth, Chelsea and Isaac all have been struggling with very severe allergies/hayfever which alone can impede daily life, not to mention coupled with the current situation. Please pray that the Lord would provide relief for them!

They are continuing to take each day at a time, starting every morning with taking communion together and committing their day ahead to Jesus. Seth said that God has been teaching them to enjoy each day and not to be anxious for tomorrow. It is certainly challenging and has been fraught with tears at times, but God’s peace has been comforting and protecting them throughout. Your prayers have been a huge encouraging factor too, and we are all so very thankful for everyone of them!

If you would like to donate to help support Jubilee please click HERE. 100% of your donation goes directly to supporting her and her family as they battle this DIPG tumor. Thank you so much and may God bless you.

Jubie getting around on her tricycle.Image

June 11th, 2013 – Update

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Got to speak with Chelsea and Seth recently and have gotten an update on the situation and how Jubie is doing.

First of all she is off of the steroids currently, which is good, and she also has been in very high spirits, with a zealous joy despite the circumstance and lots of energy. Seth told me that when they ask her how her eyes, or anything, is feeling it’s either “good” or “great”, and if anything is bothering her she just sweetly replies, “I don’t want to tell you” or will change the subject to something happy. So despite not necessarily doing physically better, she is being very upbeat and absolutely joy filled.

Right now they are trying to determine whether the symptoms, which have been worsening gradually, are due to the DIPG tumor or from the radiation’s side effect of necrosis, as the symptoms can be very similar. As of when I spoke with them Jubie is having a hard time maintaining her balance and her eyes have been in pain and had trouble focusing and blinking. Due to her lack of balance they have not been able to get out and hike or bike ride, but they have found that she absolutely adores swimming and they have been going to the Glenwood Springs hot springs where she hops into her little inner tube and kicks/paddles all over the pool for hours. So that has been a great thing to fight the lingering side effects of the steroids, as she can easily get lots of exercise in the pool and not have to worry about balance.

Please keep praying for enduring peace and for God’s healing hands upon Jubilee and her family. Chels told me that it has been a tough week for them all seeing her balance fail, but that Jubie’s joy has also been such a blessing, challenge and inspiration. They are continuing to eat very healthy, raw, cancer fighting foods and giving Jubie natural remedies to fight swelling and the cancer. The people and prayers surrounding them have also been a huge encouragement and source of strength for them. Thank you all so much for your support and love, it is of more value than we can ever express!

I will continue to try to keep you all updated as often as possible and as quickly as I can. Thank you for your encouraging comments and most importantly your continued prayers for Jubilee Grace.

If you feel called to donate to Jubilee please click HERE. 100% of your donation goes directly to supporting them through this time and the costs involved. Thank you so much and may God richly bless you!

 

May 6th, 2013 – Roadtrip Update

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I just received an email from Seth and Chelsea and it sounds like they have been having some super fun quality times together along the California coast.

Make-A-Wish ended up providing them with a wonderful time in southern California, which was a blast for Isaac and Jubilee. Jubie’s favourite parts were getting to pet a dolphin, making sand castles and getting to go on the Pirates of the Caribbean ride at Disney Land. It was a very memorable and fun time together.

Jubilee has remained on steroids since the 19th or so, but Seth and Chelsea would really like to wean her off of them at some point, and are trying with various natural herbs, as the steroids can be quite damaging over a long period. But she has been doing very well on them, returning very much to herself. The doctors at Children’s in Denver really want to do another MRI when they head back to Colorado, and they are almost certain that her symtoms returned as an effect of the radiation called necrosis, which in itself can be deadly. They are recommending a treatment that is intravenous and every 2 weeks, and that without the Avastin treatment she may need to be on the steroids indefinitely. The doctors also are very curious to see if the tumor has shrunk, or if there are any other effects that may have occurred. Jubilee has an appointment on the 24th and they would very much appreciate prayers for wisdom in that decision.

They are continuing to pray about further holistic/natural remedies, some of which are offered through the Issels Clinic in Santa Barbara. But Chelsea said that their mainstay of hope, day by day, is “continuing to hold onto the truth that only Jesus can treat her and only through Him can we stumble upon the right one(treatment)“. Please pray also for guidance and wisdom in choosing one, or any, of the possible treatments they are looking into.

They are hitting the road again today, heading north towards Redding and Bethel Church to meet some friends who are organising a prayer team to pray for Jubilee. This past week they have been camping along Big Sur and Highway 1, seeing whales, exploring coves and even taking a swim in the brisk Pacific before heading to Santa Cruz and hiking. After that they plan to head back towards the coast and go north up to Newport, Oregon to meet with Todd and Nadine.

God has been very good and Jubilee has been doing really well so far, and has been having an absolute blast on the road trip. Isaac has been such a great big brother too, loving on her and always playing together on the beach, chatting, building sand castles, exploring and playing games. Chelsea said that she can tell Jubie is feeling good because she is singing all the time, and last night was singing Rare Earth’s “I Just Want To Celebrate” when she was going to bed! Chelsea also said that Jubilee knows so many people are praying for her and talks about it all the time and they are all so thankful for your continuing prayers.

If you feel directed to help Jubilee and her family financially, please click HERE to make a donation. 100% of your donation goes directly to them and will continue to enable them to take advantage of every day together while they seek the Lord in this very hard situation. Thank you and God bless.

April 9th, 2013 – This Past Week

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This past week has held a lot. A lot of research, phone calls, connections, plans and prayers. Seth and Chelsea are feeling God’s leading and have settled on some plans for Jubilee and their family in the coming weeks.

After Easter everyone except my family (Rachel, Libby, Adi and myself) and my parents (Todd and Nadine) headed back to their homes and Seth and Chelsea got back on the confusing journey of delving into and sorting through the plethora of cancer research and treatments. One very apparent thing is that DIPG cancers/tumors are so rare that they have received very little research with basically zero progress in treatments or survivability for many years. There are a few alternative options that have been shown to attack cancers effectively and if used on Jubilee would be the first time they have been tried against DIPG. Which could be a breakthrough in fighting DIPG, but also carries the possibility of them being ineffective. But the very positive side of the treatments that they are looking at is that they are simple, non-invasive, nor riddled with horrendous side effects which would mar Jubilee’s quality of life. Seth and Chelsea have felt the Lord leading them to an alternative cancer treatment center in California, near Santa Barbara, and continue, as always to be so thankful for the massive amount of prayers for Jubilee and their family that have been relentlessly put before God by so many amazing people. Please continue to pray for them, for direction and clarity in their path and for great wisdom and peace that passes all understanding.

Right now, with the decision to head to California, they are packing and readying to take a family road trip, leaving the 10th. Their intent is to head to Santa Barbara for Jubie’s treatment, which should only last a few days, and then to make the rest of the trip, however long it lasts and whatever direction it takes them, to celebrate together as a family and enjoy every moment they have. One of Jubilee’s greatest wishes was to go to the beach, so they plan on camping on or very near the coast for at least awhile and making wonderful memories together.

Obviously their trip and its duration depends on Jubilee’s condition, which since the radiation treatment, has been quite good. Today I spent the day with Seth running to a doctor appointment in Ridgeway, followed by other last minute errands in Montrose and Delta. We got to take Jubilee and Liberty with us and we had an awesome time all together, as well as taking our little girls out to a Chinese place for lunch, which was priceless. Jubilee is her sweet, beautiful self and laughed and smiled all day, but Seth noticed that she tended to have a bit of trouble blinking and would sometimes look sideways when walking to keep herself straight, which he said reinforces all the more that they need to go, do the treatment and be a family as much as possible. Please don’t cease to be praying for Jubilee and her family as they head out on this trip. Pray against confusion and stress. That they would all be unified and covered by God’s peace and protection and that this treatment, Lord willing, would be positive and that it will effectively combat and destroy Jubilee’s tumor.

We also wanted to say a HUGE thank you to all of those who were out and participated in the Ride for Jubilee in Colorado Springs! The day after the event Mike and Leah, who were the coordinators, made a quick trip over to Paonia to see Jubie and they gave us a run down of how well it all went. We want to thank you all for your participation and the funds that were raised to help with the expenses of Jubilee’s upcoming treatment. Everyone of you who was involved at any level directly impacted, and helped, Jubilee and her family massively. We cannot thank you enough!

Please continue to share Jubilee’s story and keep her in your prayers, on prayer chains and let your churches know. And remember, “pray one for another, that ye may be healed. The effectual fervent prayer of a righteous man available much.” (James 5:16b)

The photo at the top of this post was taken by Liberty while we had our Chinese lunch (photo below), and it also was a pretty frigid winter day today, leaving Paonia with about 4-5 inches of snow, so we had a bit of a snowball fight while running errands. 🙂

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If you feel directed to donate financially to help offset the expenses that their family is facing please click HERE to make a contribution. We are extremely grateful for your support and any amount will help Jubilee and her family face the future. 100% of all contributions goes directly to them. Thank you so much and may God bless you.

March 23-26, 2013

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Over the last three days Jubilee has been doing well. She is nearly weaned off the steroids and has been much more animated and also more energetic, being more herself. We have all been trying to keep things at a relaxed, low-key level as Jubilee is still prone to getting tired and to try to simply respects their family times together.

Todd and Nadine have been researching many methods of cancer treatment and have found lots of very interesting research on fighting cancer. Please keep praying for wisdom in searching for methods of fighting this DIPG tumour. We want to make sure we are following His leading in natural medicine/treatment and not forgetting that He is the Great Physician who heals.

Yesterday we all (Caelen, Rachel, Libby, Adi, Seth, Chelsea, Isaac & Jubilee) got to go out sledding for a few hours and it was so much fun. We had races, snowball fights and made snow angels. God really blessed it and it was beautiful and sunny on the hills, looking out to the mountains. Jubilee laughed a ton and had a blast riding the sleds and smacking us all with snowballs. Isaac tried some of his first back country snowboarding too, was a snowball warrior and Chelsea chased him down the mountain as a cop, with him being the robber. It was a great time of just having a fun day.

Seth also has gotten in touch with, and spoken at length, to a few doctors who know of some alternative methods that may prove very effective. We are praying about those as we wait to know a bit more. We would very much appreciate your prayers as well.

They are also continuing on an amazingly healthy diet that is tailored to fight cancer and optimise health. The help that they have been given from friends in this area has also been awesome, with the specific, organic and natural foods delivered daily to them that fit their diet.

As always we are so thankful for your prayers and support. It is a huge blessing! We are also extremely thankful for the donations that have been, and continue to be given to support Jubilee and her family during this time. If you would like to donate please click HERE.

I, even I, am the Lord; and beside me there is no saviour. (Isaiah 43:11 KJV)

March 18th, 2013

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Today is beautiful and sunny in Paonia and Seth, Chels, Isaac and Jubilee have gone out for a bike ride together. Jubilee looked really good today and was very excited to go out riding. God also placed a gorgeous rainbow over the mountain right outside her window.

He is in control and His peace certainly passes all human understanding, and we praise Him for it and the daily blessings He has given. Please keep praying and sharing Jubilee’s story to whatever prayer chains and churches you know. As always we are so thankful for your continued support and love towards Jubilee. God bless you all.

If you have the desire to donate and help support Jubilee please click HERE to visit the ‘Donate’ page. Thank you!

Update for March 16-17th, 2013

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Seth and Chelsea arrived home on the 16th safe and sound. Jubilee was doing quite well and spent the day doing art, playing in the yard and riding the zip line that Seth built on their property. She is much more herself being home and they are all relieved to be back in Paonia.

The community of Paonia, which has been absolutely incredible with their love and support for Jubilee, organised a wonderful fundraiser/benefit at The Creamery Art Gallery and Seth attended it, but Chelsea stayed home with Jubilee to rest, and he said to me that he was completely blown away by the massive amount of love and faith and caring that people have shown and he said he could barely take a step without being hugged, loved and given encouragement. He wanted to make it known that they are extremely thankful. Seth also said that he received lots of very good information on fighting glioma tumours and cancer with natural methods.

On the 17th a friend of theirs who is a very learned nutritionist spent a large portion of the day working out an extremely healthy, nourishing diet for their family. She is also helping Seth with his allergies and severe sinus problems.

Jubilee had a good day, but was a bit tired and somber. She has had lots of love, gifts and kindness from their friends in Paonia and they are all very thankful and blessed by it. They wanted to let everyone know that they are so blessed and grateful for your amazing prayers and support. It means so much to all of us.

If you feel directed to donate to Jubilee to help them during this situation, please click ‘Donate’ at the top of the page or click HERE.

Update for March 13-15th, 2013

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Apologies for the delayed update! My wife
and I and our two children have been travelling from England to the
US and are now settling into the time change and fighting jet lag.
Praise Jesus our flights went awesome, with our little girls sleeping well and with no crying or ear pain! Answer to
prayer!

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Jubilee has had trouble sleeping so was very tired in the morning but still wanted to go to the zoo again. So Seth and Chelsea took her and Isaac again and though she slept for part of it, she really had a fun time and so did Isaac. Unfortunately Isaac came down with a stomach bug, which meant he had to go back with Chelsea’s parents to their hotel for the night as Jubilee is very susceptible to viruses while fighting the DIPG and undergoing radiation. The following night he still was not 100%, so stayed with Todd and Nadine. Jubilee was showing signs of it as well the morning of the 14th, but woke up this morning well. Isaac and Chelsea are both well too. Seth did not get the stomach bug, but has been fighting a nasty sinus infection, so please pray for that to go away and that health will be restored! Jubilee’s radiation treatment has gone well and she had her last session this morning and they are heading back home after a final meeting with the doctors in Denver. They are really looking forward to getting Jubilee on a good, nutritious diet and using natural remedies to build up her health and boost her immune system. Jubilee is also very much looking forward to finally being home. Please pray for Jubilee that with her radiation treatment complete, coupled with
being home and having a very healthy, natural diet etc, that she would regain her energy and health and be completely herself, and that that would be permanent if that is God’s plan. Also pray for protection for their family from any further viruses etc, and that they are able to stay together and enjoying their days without worrying about any sickness. We are constantly reminded of the words spoken to Jubilee by the Lord, “Don’t be afraid” and “I love you and your family so much”. He is reassuring, loving and sustaining Jubilee, and us, and we know He has a plan for this situation. God bless you all and thank you for your continued prayers for little Jubilee! They do not go unnoticed and are a huge blessing. We also wanted to thank those of you who have donated to help during this very difficult time. Your donations have been amazing and we are amazed at the blessings people have shared with this beautiful family. Rachel, myself and our girls will be getting to Paonia on Tuesday and Todd and Nadine are heading over to Paonia as well. Some very wonderful friends have offered their homes up for us to lodge in for the duration of our stay, which is a huge blessing! I will post another update as soon as I have more info.
God bless.

Update for March 11th

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Jubilee did great in radiation this morning but is adamant that she wants to go home to Paonia, which I think both Seth and Chelsea are also ready for. The radiation will be over on Friday, so please be praying for safe travels back to Paonia for them.

After the radiation, with most of the family having headed back to their homes, they spent the day as a family, just the four of them, playing games and having fun.

Jubilee is on steroids to keep the swelling and fluid under control around the DIPG tumour. They tend to make her hungry constantly and she can also get aggressive too. Once the radiation is finished they are going to wean her of of them, but in the meantime please pray against the aggressive side effects. The radiation will hopefully shrink the tumour and slow it’s progression down. It is the only known treatment for this type of Glioma tumour, but has only been shown to slow the DIPG down, not eliminate it. We continue to pray hard everyday for a miracle and hope you will join us.

Please continue to share Jubilee’s story with your churches and prayer chains, and please continue to lift her up in your thoughts and prayers!

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