Update – June 26th, 2013

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I had the chance to catch up with Seth and Chelsea for a bit and wanted to give an update on Jubie currently.

So far the worsening of her symptoms, whether due to the necrosis or any tumor growth, seems to have stopped, which is great! Praise God! As of now Jubilee cannot walk as her balance is very poor and she has a lack of control over her movements, and she has had trouble with here eyes and she often must crawl from one place to the next. But her attitude is cheerful and happy and she is full of energy as well!

Todd and Nadine bought her a tricycle which, since it does not require balancing, has enabled her to be very mobile and aid in exercising to fight the affects of the steroids, and she loves to zoom around and ride it all over. She can’t walk but she certainly can ride, so it has been immensely helpful!

They are continuing to seek God as to what possible options there are in the realm of treatments. Currently they are driving to nearby Farmington to meet with a lovely Christian woman who is a reflexologist. The foot zoning reflexology treats the nerve endings in the body and the visits have had good results. Her eyes are looking better and they are only a 2 treatments into the course of 7 visits, so Lord willing it will be very helpful. I will update as soon as I know or hear more.

They also said that the community of friends and family has continued to be such a huge blessing and help to them and they are so thankful for your ongoing prayers. Many of their friends in Paonia have been dropping by to pray for Jubie as well which has been a very encouraging blessing as well.

One thing that could really use prayer as well is that Seth, Chelsea and Isaac all have been struggling with very severe allergies/hayfever which alone can impede daily life, not to mention coupled with the current situation. Please pray that the Lord would provide relief for them!

They are continuing to take each day at a time, starting every morning with taking communion together and committing their day ahead to Jesus. Seth said that God has been teaching them to enjoy each day and not to be anxious for tomorrow. It is certainly challenging and has been fraught with tears at times, but God’s peace has been comforting and protecting them throughout. Your prayers have been a huge encouraging factor too, and we are all so very thankful for everyone of them!

If you would like to donate to help support Jubilee please click HERE. 100% of your donation goes directly to supporting her and her family as they battle this DIPG tumor. Thank you so much and may God bless you.

Jubie getting around on her tricycle.Image

May 6th, 2013 – Roadtrip Update

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I just received an email from Seth and Chelsea and it sounds like they have been having some super fun quality times together along the California coast.

Make-A-Wish ended up providing them with a wonderful time in southern California, which was a blast for Isaac and Jubilee. Jubie’s favourite parts were getting to pet a dolphin, making sand castles and getting to go on the Pirates of the Caribbean ride at Disney Land. It was a very memorable and fun time together.

Jubilee has remained on steroids since the 19th or so, but Seth and Chelsea would really like to wean her off of them at some point, and are trying with various natural herbs, as the steroids can be quite damaging over a long period. But she has been doing very well on them, returning very much to herself. The doctors at Children’s in Denver really want to do another MRI when they head back to Colorado, and they are almost certain that her symtoms returned as an effect of the radiation called necrosis, which in itself can be deadly. They are recommending a treatment that is intravenous and every 2 weeks, and that without the Avastin treatment she may need to be on the steroids indefinitely. The doctors also are very curious to see if the tumor has shrunk, or if there are any other effects that may have occurred. Jubilee has an appointment on the 24th and they would very much appreciate prayers for wisdom in that decision.

They are continuing to pray about further holistic/natural remedies, some of which are offered through the Issels Clinic in Santa Barbara. But Chelsea said that their mainstay of hope, day by day, is “continuing to hold onto the truth that only Jesus can treat her and only through Him can we stumble upon the right one(treatment)“. Please pray also for guidance and wisdom in choosing one, or any, of the possible treatments they are looking into.

They are hitting the road again today, heading north towards Redding and Bethel Church to meet some friends who are organising a prayer team to pray for Jubilee. This past week they have been camping along Big Sur and Highway 1, seeing whales, exploring coves and even taking a swim in the brisk Pacific before heading to Santa Cruz and hiking. After that they plan to head back towards the coast and go north up to Newport, Oregon to meet with Todd and Nadine.

God has been very good and Jubilee has been doing really well so far, and has been having an absolute blast on the road trip. Isaac has been such a great big brother too, loving on her and always playing together on the beach, chatting, building sand castles, exploring and playing games. Chelsea said that she can tell Jubie is feeling good because she is singing all the time, and last night was singing Rare Earth’s “I Just Want To Celebrate” when she was going to bed! Chelsea also said that Jubilee knows so many people are praying for her and talks about it all the time and they are all so thankful for your continuing prayers.

If you feel directed to help Jubilee and her family financially, please click HERE to make a donation. 100% of your donation goes directly to them and will continue to enable them to take advantage of every day together while they seek the Lord in this very hard situation. Thank you and God bless.

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