Update – June 26th, 2013

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I had the chance to catch up with Seth and Chelsea for a bit and wanted to give an update on Jubie currently.

So far the worsening of her symptoms, whether due to the necrosis or any tumor growth, seems to have stopped, which is great! Praise God! As of now Jubilee cannot walk as her balance is very poor and she has a lack of control over her movements, and she has had trouble with here eyes and she often must crawl from one place to the next. But her attitude is cheerful and happy and she is full of energy as well!

Todd and Nadine bought her a tricycle which, since it does not require balancing, has enabled her to be very mobile and aid in exercising to fight the affects of the steroids, and she loves to zoom around and ride it all over. She can’t walk but she certainly can ride, so it has been immensely helpful!

They are continuing to seek God as to what possible options there are in the realm of treatments. Currently they are driving to nearby Farmington to meet with a lovely Christian woman who is a reflexologist. The foot zoning reflexology treats the nerve endings in the body and the visits have had good results. Her eyes are looking better and they are only a 2 treatments into the course of 7 visits, so Lord willing it will be very helpful. I will update as soon as I know or hear more.

They also said that the community of friends and family has continued to be such a huge blessing and help to them and they are so thankful for your ongoing prayers. Many of their friends in Paonia have been dropping by to pray for Jubie as well which has been a very encouraging blessing as well.

One thing that could really use prayer as well is that Seth, Chelsea and Isaac all have been struggling with very severe allergies/hayfever which alone can impede daily life, not to mention coupled with the current situation. Please pray that the Lord would provide relief for them!

They are continuing to take each day at a time, starting every morning with taking communion together and committing their day ahead to Jesus. Seth said that God has been teaching them to enjoy each day and not to be anxious for tomorrow. It is certainly challenging and has been fraught with tears at times, but God’s peace has been comforting and protecting them throughout. Your prayers have been a huge encouraging factor too, and we are all so very thankful for everyone of them!

If you would like to donate to help support Jubilee please click HERE. 100% of your donation goes directly to supporting her and her family as they battle this DIPG tumor. Thank you so much and may God bless you.

Jubie getting around on her tricycle.Image

June 11th, 2013 – Update

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Got to speak with Chelsea and Seth recently and have gotten an update on the situation and how Jubie is doing.

First of all she is off of the steroids currently, which is good, and she also has been in very high spirits, with a zealous joy despite the circumstance and lots of energy. Seth told me that when they ask her how her eyes, or anything, is feeling it’s either “good” or “great”, and if anything is bothering her she just sweetly replies, “I don’t want to tell you” or will change the subject to something happy. So despite not necessarily doing physically better, she is being very upbeat and absolutely joy filled.

Right now they are trying to determine whether the symptoms, which have been worsening gradually, are due to the DIPG tumor or from the radiation’s side effect of necrosis, as the symptoms can be very similar. As of when I spoke with them Jubie is having a hard time maintaining her balance and her eyes have been in pain and had trouble focusing and blinking. Due to her lack of balance they have not been able to get out and hike or bike ride, but they have found that she absolutely adores swimming and they have been going to the Glenwood Springs hot springs where she hops into her little inner tube and kicks/paddles all over the pool for hours. So that has been a great thing to fight the lingering side effects of the steroids, as she can easily get lots of exercise in the pool and not have to worry about balance.

Please keep praying for enduring peace and for God’s healing hands upon Jubilee and her family. Chels told me that it has been a tough week for them all seeing her balance fail, but that Jubie’s joy has also been such a blessing, challenge and inspiration. They are continuing to eat very healthy, raw, cancer fighting foods and giving Jubie natural remedies to fight swelling and the cancer. The people and prayers surrounding them have also been a huge encouragement and source of strength for them. Thank you all so much for your support and love, it is of more value than we can ever express!

I will continue to try to keep you all updated as often as possible and as quickly as I can. Thank you for your encouraging comments and most importantly your continued prayers for Jubilee Grace.

If you feel called to donate to Jubilee please click HERE. 100% of your donation goes directly to supporting them through this time and the costs involved. Thank you so much and may God richly bless you!

 

May 6th, 2013 – Roadtrip Update

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I just received an email from Seth and Chelsea and it sounds like they have been having some super fun quality times together along the California coast.

Make-A-Wish ended up providing them with a wonderful time in southern California, which was a blast for Isaac and Jubilee. Jubie’s favourite parts were getting to pet a dolphin, making sand castles and getting to go on the Pirates of the Caribbean ride at Disney Land. It was a very memorable and fun time together.

Jubilee has remained on steroids since the 19th or so, but Seth and Chelsea would really like to wean her off of them at some point, and are trying with various natural herbs, as the steroids can be quite damaging over a long period. But she has been doing very well on them, returning very much to herself. The doctors at Children’s in Denver really want to do another MRI when they head back to Colorado, and they are almost certain that her symtoms returned as an effect of the radiation called necrosis, which in itself can be deadly. They are recommending a treatment that is intravenous and every 2 weeks, and that without the Avastin treatment she may need to be on the steroids indefinitely. The doctors also are very curious to see if the tumor has shrunk, or if there are any other effects that may have occurred. Jubilee has an appointment on the 24th and they would very much appreciate prayers for wisdom in that decision.

They are continuing to pray about further holistic/natural remedies, some of which are offered through the Issels Clinic in Santa Barbara. But Chelsea said that their mainstay of hope, day by day, is “continuing to hold onto the truth that only Jesus can treat her and only through Him can we stumble upon the right one(treatment)“. Please pray also for guidance and wisdom in choosing one, or any, of the possible treatments they are looking into.

They are hitting the road again today, heading north towards Redding and Bethel Church to meet some friends who are organising a prayer team to pray for Jubilee. This past week they have been camping along Big Sur and Highway 1, seeing whales, exploring coves and even taking a swim in the brisk Pacific before heading to Santa Cruz and hiking. After that they plan to head back towards the coast and go north up to Newport, Oregon to meet with Todd and Nadine.

God has been very good and Jubilee has been doing really well so far, and has been having an absolute blast on the road trip. Isaac has been such a great big brother too, loving on her and always playing together on the beach, chatting, building sand castles, exploring and playing games. Chelsea said that she can tell Jubie is feeling good because she is singing all the time, and last night was singing Rare Earth’s “I Just Want To Celebrate” when she was going to bed! Chelsea also said that Jubilee knows so many people are praying for her and talks about it all the time and they are all so thankful for your continuing prayers.

If you feel directed to help Jubilee and her family financially, please click HERE to make a donation. 100% of your donation goes directly to them and will continue to enable them to take advantage of every day together while they seek the Lord in this very hard situation. Thank you and God bless.

April 9th, 2013 – This Past Week

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This past week has held a lot. A lot of research, phone calls, connections, plans and prayers. Seth and Chelsea are feeling God’s leading and have settled on some plans for Jubilee and their family in the coming weeks.

After Easter everyone except my family (Rachel, Libby, Adi and myself) and my parents (Todd and Nadine) headed back to their homes and Seth and Chelsea got back on the confusing journey of delving into and sorting through the plethora of cancer research and treatments. One very apparent thing is that DIPG cancers/tumors are so rare that they have received very little research with basically zero progress in treatments or survivability for many years. There are a few alternative options that have been shown to attack cancers effectively and if used on Jubilee would be the first time they have been tried against DIPG. Which could be a breakthrough in fighting DIPG, but also carries the possibility of them being ineffective. But the very positive side of the treatments that they are looking at is that they are simple, non-invasive, nor riddled with horrendous side effects which would mar Jubilee’s quality of life. Seth and Chelsea have felt the Lord leading them to an alternative cancer treatment center in California, near Santa Barbara, and continue, as always to be so thankful for the massive amount of prayers for Jubilee and their family that have been relentlessly put before God by so many amazing people. Please continue to pray for them, for direction and clarity in their path and for great wisdom and peace that passes all understanding.

Right now, with the decision to head to California, they are packing and readying to take a family road trip, leaving the 10th. Their intent is to head to Santa Barbara for Jubie’s treatment, which should only last a few days, and then to make the rest of the trip, however long it lasts and whatever direction it takes them, to celebrate together as a family and enjoy every moment they have. One of Jubilee’s greatest wishes was to go to the beach, so they plan on camping on or very near the coast for at least awhile and making wonderful memories together.

Obviously their trip and its duration depends on Jubilee’s condition, which since the radiation treatment, has been quite good. Today I spent the day with Seth running to a doctor appointment in Ridgeway, followed by other last minute errands in Montrose and Delta. We got to take Jubilee and Liberty with us and we had an awesome time all together, as well as taking our little girls out to a Chinese place for lunch, which was priceless. Jubilee is her sweet, beautiful self and laughed and smiled all day, but Seth noticed that she tended to have a bit of trouble blinking and would sometimes look sideways when walking to keep herself straight, which he said reinforces all the more that they need to go, do the treatment and be a family as much as possible. Please don’t cease to be praying for Jubilee and her family as they head out on this trip. Pray against confusion and stress. That they would all be unified and covered by God’s peace and protection and that this treatment, Lord willing, would be positive and that it will effectively combat and destroy Jubilee’s tumor.

We also wanted to say a HUGE thank you to all of those who were out and participated in the Ride for Jubilee in Colorado Springs! The day after the event Mike and Leah, who were the coordinators, made a quick trip over to Paonia to see Jubie and they gave us a run down of how well it all went. We want to thank you all for your participation and the funds that were raised to help with the expenses of Jubilee’s upcoming treatment. Everyone of you who was involved at any level directly impacted, and helped, Jubilee and her family massively. We cannot thank you enough!

Please continue to share Jubilee’s story and keep her in your prayers, on prayer chains and let your churches know. And remember, “pray one for another, that ye may be healed. The effectual fervent prayer of a righteous man available much.” (James 5:16b)

The photo at the top of this post was taken by Liberty while we had our Chinese lunch (photo below), and it also was a pretty frigid winter day today, leaving Paonia with about 4-5 inches of snow, so we had a bit of a snowball fight while running errands. 🙂

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If you feel directed to donate financially to help offset the expenses that their family is facing please click HERE to make a contribution. We are extremely grateful for your support and any amount will help Jubilee and her family face the future. 100% of all contributions goes directly to them. Thank you so much and may God bless you.

March 23-26, 2013

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Over the last three days Jubilee has been doing well. She is nearly weaned off the steroids and has been much more animated and also more energetic, being more herself. We have all been trying to keep things at a relaxed, low-key level as Jubilee is still prone to getting tired and to try to simply respects their family times together.

Todd and Nadine have been researching many methods of cancer treatment and have found lots of very interesting research on fighting cancer. Please keep praying for wisdom in searching for methods of fighting this DIPG tumour. We want to make sure we are following His leading in natural medicine/treatment and not forgetting that He is the Great Physician who heals.

Yesterday we all (Caelen, Rachel, Libby, Adi, Seth, Chelsea, Isaac & Jubilee) got to go out sledding for a few hours and it was so much fun. We had races, snowball fights and made snow angels. God really blessed it and it was beautiful and sunny on the hills, looking out to the mountains. Jubilee laughed a ton and had a blast riding the sleds and smacking us all with snowballs. Isaac tried some of his first back country snowboarding too, was a snowball warrior and Chelsea chased him down the mountain as a cop, with him being the robber. It was a great time of just having a fun day.

Seth also has gotten in touch with, and spoken at length, to a few doctors who know of some alternative methods that may prove very effective. We are praying about those as we wait to know a bit more. We would very much appreciate your prayers as well.

They are also continuing on an amazingly healthy diet that is tailored to fight cancer and optimise health. The help that they have been given from friends in this area has also been awesome, with the specific, organic and natural foods delivered daily to them that fit their diet.

As always we are so thankful for your prayers and support. It is a huge blessing! We are also extremely thankful for the donations that have been, and continue to be given to support Jubilee and her family during this time. If you would like to donate please click HERE.

I, even I, am the Lord; and beside me there is no saviour. (Isaiah 43:11 KJV)

March 22, 2013

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Today was a tough one. Please continue to pray for Jubilee and her family as they face this situation. It is solely by Jesus’s power and peace that they can walk in hope each day. Continue to pray His mighty protection over them and His awesome healing for Jubilee.

Jubilee did alright today, but was somewhat withdrawn and tired. Please pray for her to continue to improve as the steroid doses get lower. God’s hand is on her and we ask for fervent Prayer over her every minute of the day. We met only briefly at a friend’s house who was babysitting baby piglets, to let the kids see them. Then Chelsea took Jubilee back home and Seth and Jubie spent time together on a daddy/daughter date.

Please also be praying for Seth as he had an incredibly hard day of severe allergies, which are literally the last thing he needs to be dealing with right now. He has a long history of poor sinuses and nasty allergies, so please lift that up in prayer as well.

Your prayers are so appreciated and effective. Please continue to keep fervently praying for Jubilee, Seth, Chelsea and Isaac.

Update for March 13-15th, 2013

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Apologies for the delayed update! My wife
and I and our two children have been travelling from England to the
US and are now settling into the time change and fighting jet lag.
Praise Jesus our flights went awesome, with our little girls sleeping well and with no crying or ear pain! Answer to
prayer!

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Jubilee has had trouble sleeping so was very tired in the morning but still wanted to go to the zoo again. So Seth and Chelsea took her and Isaac again and though she slept for part of it, she really had a fun time and so did Isaac. Unfortunately Isaac came down with a stomach bug, which meant he had to go back with Chelsea’s parents to their hotel for the night as Jubilee is very susceptible to viruses while fighting the DIPG and undergoing radiation. The following night he still was not 100%, so stayed with Todd and Nadine. Jubilee was showing signs of it as well the morning of the 14th, but woke up this morning well. Isaac and Chelsea are both well too. Seth did not get the stomach bug, but has been fighting a nasty sinus infection, so please pray for that to go away and that health will be restored! Jubilee’s radiation treatment has gone well and she had her last session this morning and they are heading back home after a final meeting with the doctors in Denver. They are really looking forward to getting Jubilee on a good, nutritious diet and using natural remedies to build up her health and boost her immune system. Jubilee is also very much looking forward to finally being home. Please pray for Jubilee that with her radiation treatment complete, coupled with
being home and having a very healthy, natural diet etc, that she would regain her energy and health and be completely herself, and that that would be permanent if that is God’s plan. Also pray for protection for their family from any further viruses etc, and that they are able to stay together and enjoying their days without worrying about any sickness. We are constantly reminded of the words spoken to Jubilee by the Lord, “Don’t be afraid” and “I love you and your family so much”. He is reassuring, loving and sustaining Jubilee, and us, and we know He has a plan for this situation. God bless you all and thank you for your continued prayers for little Jubilee! They do not go unnoticed and are a huge blessing. We also wanted to thank those of you who have donated to help during this very difficult time. Your donations have been amazing and we are amazed at the blessings people have shared with this beautiful family. Rachel, myself and our girls will be getting to Paonia on Tuesday and Todd and Nadine are heading over to Paonia as well. Some very wonderful friends have offered their homes up for us to lodge in for the duration of our stay, which is a huge blessing! I will post another update as soon as I have more info.
God bless.

Updated ‘Donate’ Page

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Just wanted to share that we have sorted out the ‘Donate’ page and you can now donate to Jubilee online, via a Credit or Debit card. You can also do a direct Bank Transfer or a traditional, physical check through the mail.

Thank you all so much for your prayers and for your desire to help support Seth, Chelsea, Isaac and Jubilee. May God richly bless you!

Update for March 9th

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Denver got blanketed in snow and all of Chelsea’s brothers and their families made it without incident, so thank you all for your prayers! They all spent most of the day together with Jubilee, Seth, Chelsea and Isaac at the Ronald McDonald house. Jubilee did really well, but tires easily and had a long nap, but after which they all got to go bowling together. Two of Chelsea’s brothers have new little babies and Isaac and Jubilee both were very excited to meet them and loved seeing them. They all had a wonderful time with the family. Jubilee, Isaac and their cousins loved bowling and dancing to music at the bowling alley, eating french fries and just hanging out together. After the bowling Seth, Chelsea and Jubilee headed back to the Ronald house for the dinner, as Jubilee loves the dinners that they serve. Isaac stayed with the rest of the family to bowl and hang with his cousin Hunter.

The Ronald McDonald house in Aurora, very near the Children’s Hospital, is an amazing facility and is much like a nice hotel, catered towards children, and has really blessed them, especially Jubilee. The convenience alone of being able to stay so near the hospital has also been huge. The facility has large common areas for play and for spending family time together. Dinners are served by volunteers each night which keeps things low key and as stress free as possible.

Jubilee has been doing very well leading up to the radiology. They moved the port with the pick line to her heart for anesthesia to her upper arm with no trouble, and it makes the anesthetic take effect very quickly and with less pain. Everything is set for radiology on Monday.

Please keep Jubilee in your prayers. We are praying for God’s healing hand to be on Jubilee and peace and comfort on their family.

Day Off Update

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Here is an extended update on yesterday and what is coming in the next few days.

Seth, Chelsea, Isaac and Jubilee met with our parents at the Denver Butterfly Pavilion and had a really good time together. Jubilee loved it, but was also pretty tired and her headache had returned, though not as badly. Isaac also loved the Pavilion, especially the insect and spider exhibits, and it was overall a great time to not be near the hospital or have to meet with more doctors. It was a blessing just to have a day with some similitude of normalcy and to make some memories together.

After that our parents split off, and Seth took his family to Thai food and a playground and just had time together as a family. Seth said that they have heard plenty of bad news and are ready to just celebrate every day and moment together and make it a jubilee! Jubilee also perked up in the afternoon and was doing well.

Chelsea really wanted everyone to know that she would love to be able to respond to everyone who has sent their prayers and thoughts, and that hearing from so many, and the love and prayers they are being covered in, is so appreciated and makes the situation a bit more bearable knowing that they are not alone.

They also wanted to share the exact info on what kind of tumour/cancer this is, so that people can know what to pray for. The type of tumour is called Diffuse Intrinsic Pontine Glioma (DIPG), and it is quite rare , only 150-200 children per year diagnosed with it, and it is truly inoperable due to it’s location and integration in the middle of the brain stem, making it impossible to get to. The severity of it has been made even more real by doctor after doctor they have spoken to. Seth has contacted neurosurgeons and specialists from Boston to San Francisco, even including a patient of Dr. Ben Carson, who spoke in front of the president at the National Prayer Breakfast this year, but all of them, upon learning the type of tumour have no further treatment or advice. But we know that that only means Jubilee is ever more so in the beautiful hands of her Creator, Jesus, who can do more than any elite team of doctors could ever hope. So please continue your prayers for her and pray that Jesus would remove this DIPG tumour from Jubilee and make her an even greater testimony of His power and love, if it be His will.

Today, the 6th, Jubilee will be heading back to the hospital to get the radiation mask molded to fit her face. It is formed to hold her perfectly still, with specific openings in it to direct the radiation to the right spots. Her treatment will begin on Monday and last 5 working days, so Monday through Friday, the 11th – 15th. She is also getting a port put into her arm that goes directly to her heart for anesthesia each time they go in for the treatment. Each bout of radiation lasts 20 minutes. Please pray for the treatment as fast growing tumours, like Jubilee’s, are not known to respond as well as slower growing ones, but we are hoping this one will and that she will bounce back. Statistically these treatments can increase a child’s time by 1-12 months.

They are also moving to a very convenient and nice Ronald McDonald house that is very close to the hospital and is only $15 per night for the family. So that is a blessing!

Our parents and Aunt Penny are going to be taking Isaac and his cousin Parker to the History and Science Museum to get them out and help deal with the whole situation. Please pray for Isaac and Parker as they both have been having a tough time processing what is going on, let alone understanding.

So please continue your prayers for their precious family as they face the radiation treatment, and that Jubilee will respond well to it and that it won’t have any bad side effects. Pray that every moment together can be precious and whatever time God has given, whether weeks or years, will be blessed.

Thank you all again for your ongoing support.

Psalms 73:26 
My flesh and my heart fail; But God is the strength of my heart and my portion forever.

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