Update – June 26th, 2013

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I had the chance to catch up with Seth and Chelsea for a bit and wanted to give an update on Jubie currently.

So far the worsening of her symptoms, whether due to the necrosis or any tumor growth, seems to have stopped, which is great! Praise God! As of now Jubilee cannot walk as her balance is very poor and she has a lack of control over her movements, and she has had trouble with here eyes and she often must crawl from one place to the next. But her attitude is cheerful and happy and she is full of energy as well!

Todd and Nadine bought her a tricycle which, since it does not require balancing, has enabled her to be very mobile and aid in exercising to fight the affects of the steroids, and she loves to zoom around and ride it all over. She can’t walk but she certainly can ride, so it has been immensely helpful!

They are continuing to seek God as to what possible options there are in the realm of treatments. Currently they are driving to nearby Farmington to meet with a lovely Christian woman who is a reflexologist. The foot zoning reflexology treats the nerve endings in the body and the visits have had good results. Her eyes are looking better and they are only a 2 treatments into the course of 7 visits, so Lord willing it will be very helpful. I will update as soon as I know or hear more.

They also said that the community of friends and family has continued to be such a huge blessing and help to them and they are so thankful for your ongoing prayers. Many of their friends in Paonia have been dropping by to pray for Jubie as well which has been a very encouraging blessing as well.

One thing that could really use prayer as well is that Seth, Chelsea and Isaac all have been struggling with very severe allergies/hayfever which alone can impede daily life, not to mention coupled with the current situation. Please pray that the Lord would provide relief for them!

They are continuing to take each day at a time, starting every morning with taking communion together and committing their day ahead to Jesus. Seth said that God has been teaching them to enjoy each day and not to be anxious for tomorrow. It is certainly challenging and has been fraught with tears at times, but God’s peace has been comforting and protecting them throughout. Your prayers have been a huge encouraging factor too, and we are all so very thankful for everyone of them!

If you would like to donate to help support Jubilee please click HERE. 100% of your donation goes directly to supporting her and her family as they battle this DIPG tumor. Thank you so much and may God bless you.

Jubie getting around on her tricycle.Image

June 11th, 2013 – Update

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Got to speak with Chelsea and Seth recently and have gotten an update on the situation and how Jubie is doing.

First of all she is off of the steroids currently, which is good, and she also has been in very high spirits, with a zealous joy despite the circumstance and lots of energy. Seth told me that when they ask her how her eyes, or anything, is feeling it’s either “good” or “great”, and if anything is bothering her she just sweetly replies, “I don’t want to tell you” or will change the subject to something happy. So despite not necessarily doing physically better, she is being very upbeat and absolutely joy filled.

Right now they are trying to determine whether the symptoms, which have been worsening gradually, are due to the DIPG tumor or from the radiation’s side effect of necrosis, as the symptoms can be very similar. As of when I spoke with them Jubie is having a hard time maintaining her balance and her eyes have been in pain and had trouble focusing and blinking. Due to her lack of balance they have not been able to get out and hike or bike ride, but they have found that she absolutely adores swimming and they have been going to the Glenwood Springs hot springs where she hops into her little inner tube and kicks/paddles all over the pool for hours. So that has been a great thing to fight the lingering side effects of the steroids, as she can easily get lots of exercise in the pool and not have to worry about balance.

Please keep praying for enduring peace and for God’s healing hands upon Jubilee and her family. Chels told me that it has been a tough week for them all seeing her balance fail, but that Jubie’s joy has also been such a blessing, challenge and inspiration. They are continuing to eat very healthy, raw, cancer fighting foods and giving Jubie natural remedies to fight swelling and the cancer. The people and prayers surrounding them have also been a huge encouragement and source of strength for them. Thank you all so much for your support and love, it is of more value than we can ever express!

I will continue to try to keep you all updated as often as possible and as quickly as I can. Thank you for your encouraging comments and most importantly your continued prayers for Jubilee Grace.

If you feel called to donate to Jubilee please click HERE. 100% of your donation goes directly to supporting them through this time and the costs involved. Thank you so much and may God richly bless you!

 

May 29th, 2013 – Overdue Update!

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Apologies for the very overdue update! With being on opposite sides of the world, and them being on their road trip, home for a short time, then back out camping, Seth and I have been playing phone tag quite a bit! But I was able to speak with them the other day and actually Jubilee answered when I called so I got to have a good little chat.

Over the past weeks Seth and Chelsea have been reviewing and making decisions concerning treatments for Jubie and seeking the Lord for His direction as to where He will lead them next. We want to say a very heartfelt and grateful thank you for the continual prayers for Jubilee and her family. He is their greatest help and comfort and we know that through this entire situation He has been in control and leading them into every day, and will continue to do so.

I am not certain as to the day(23-25th), but they returned home to Paonia and though their road trip was amazing, it was nice for them to get back home for a bit. They have been re-connecting with their many friends and Isaac and Jubilee were both very excited to see their little  friends and enjoy some summer fun together. Seth caught up on the farm with the chores that needed doing, attacking the grass, tending the orchard and replacing their faulty faucet. A very dear friend of theirs, Josh, who has known Seth since he was about 15, also came to Crow Farm to spend some time with them too.

The road trip through California was awesome, and they really enjoyed visiting family and friends, and making new friends along the way. They stopped at Bethel, a church in Redding, CA as a good friend of theirs arranged for a group of prayer warriors to get together and pray over Jubilee the night they arrived and the next day. Jubile was her sweet self and was happy to get prayed for. The 8th grade class at the school which is part of the church also stopped, put their curriculum aside and all prayed wonderful prayers for her, all emphasizing life and more life! One thing that Seth and Chels really realized through their time and the prayers at Bethel was that they have been constantly surrounded by the thoughts of hopelessness and the prognosis of death surrounding this situation and how important it is to continue, steadfastly, praying the power of Christ’s life over Jubilee and keeping their focus on Him and His peace. It has certainly been hard to not despair when the medical community and the research seems to all lead to only “terminal”, “inoperable” and  “fatal”. We ask you to please continue to pray for Jubilee, and pray that Jubie may have life, and have it abundantly! (John 10:10b) We pray believing that no matter how many years God gives her that she will continue to be filled with His light and that this trial will be an incredible testimony to God’s everlasting goodness.

After they left Redding they headed up the coast towards Oregon, camping and touring along the way. They got to see some lighthouses and also spotted Gray whales breaching repeatedly just off the shore, which was a beautiful treat. They then headed to Newport, Oregon to meet with Seth’s parents, Todd & Nadine, for five days. The weather was rather inclement for most of the time, so they stayed indoors together, but were able to celebrate Mother’s Day together and took advantage of the down time to have a relaxed time. It was a big blessing to get to hug, hold and pray over Jubilee, fly kites, take a few walks and go swimming with both kids one day so that Seth and Chelsea could go on a bike ride together to connect.

Isaac and Jubilee both wanted to go back to Bethel on their way back to Paonia, which they did, and Jubilee was prayed for in a very busy, crowded prayer room but God also used that stop for a divine meeting with a dear couple whom they bumped into in the parking lot. The woman prays specifically for children with brain issues and her sweet, gentle prayers blessed them with their kindness and sincerity for Jubilee and their family. While they stayed in Redding, some dear old friends of our family, the Reinhartdts, showed them wonderful hospitality, taking them out on Lake Shasta in their boat for the afternoon and having them stay overnight. Jubie and Isaac were both delighted that they were allowed to drive the boat for a short time too! Leaving Redding they headed toward Yosemite and had a wonderful drive through the park there.

They know their entire trip was orchestrated by God and was exactly what they needed to be able to hear His voice and get away from the busyness of life and to just be a family together. They were led to Santa Barbara in hopes of an alternative treatment, but instead it turned to a journey filled with wonderful people being brought into their lives, took them to beautiful places of God’s creation, gave them time with family and friends and most importantly helped them to refocus on where God is leading them next.

As for Jubilee’s current condition: She is doing extremely well, which has surprised the doctors. The steroids have made her quite swollen and has caused her to gain a significant amount of weight which is primarily fluid retention. Due to the speed of the weight gain her muscles have not been able to grow to keep up, so she is prone to some muscle weakness. They have been encouraging her to have consistent activity, including biking, swimming and walking which helps to keep her from needing any special physical therapy. They have also been working to reduce the steroids, and have significantly, by using natural supplements to reduce swelling in her brain stem due to the radiation and/or DIPG tumor. So far the effect has been good and they are hoping to bring her completely off of the steroids soon. They have found that the symptoms she has shown periodically, such as imbalance or inability to focus her eyes, is due to the necrosis from the radiation and not necessarily from any growth of the DIPG.

Once they had arrived home Seth called Children’s Hospital in Denver and spoke to the oncologist about the MRI they had scheduled for her, and when Seth explained Jubie’s zest for life and how well she is currently doing the doctor said that it was not necessary to get the MRI now and also assured they that if the tumor was growing her symtoms would be much more obvious and would be worsening much quicker. He believes, from experience, that the necrosis (damage from the radiation) will continue to heal and not be permanent. Please pray for that to be so just as much as for the tumor to never return! We are so marvellously thankful that the tumor does not seem to be growing at this stage!

Seth and Chelsea researched a new drug called Avastin, and through their research found that they do not believe it would be best for her as it’s side effects can be severe and extremely harmful, destroying any quality of life. They have connections with a person in Durango, CO that has helped many cancer patients through alternative treatments and nutritional diet and they are going to be meeting him at the end of this week. Please pray for wisdom and guidance as they meet and discuss further options, that the Lord would lead their way!

Sweet Jubie is continuing with her extremely healthy diet and is amazingly compliant when it comes to taking the natural remedies and drinking her green juice. She has maintained her wonderful attitude and prays daily that God would heal her “owie” in her brain and talks excitedly about turning five and when she grows up. Within the last few days at home she has enjoyed water fights and bike rides, which has shown a healthy energy level and joy in just living. Please don’t cease to pray for her, for life, peace and the perfect will of Jesus. Thank you!

If you would like to leave a message for Seth and Chelsea or Jubie, please respond below via the comments section as the incoming comments/messages do get forwarded to them and I know they appreciate your written thoughts and prayers very much.

If you feel God calling you to donate to help support Jubilee and her family financially, please click HERE. 100% of your donation goes directly to them. Any amount will help them through this trial, providing for them to spend as much time together as a family as possible. We are so incredibly thankful for your donations and your continual prayers for Jubilee Grace. Thank you and God bless. 

April 12th, 2013 – Update

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Just a very short update today.

Seth, Chelsea, Isaac and Jubilee all headed out safely and are going to be arriving in Santa Barbara tonight. Accommodation has graciously been provided for through a man at Calvary Chapel Santa Barbara, in the form of a rental home that was vacant for the dates they needed, praise God!

Jubilee’s treatment begins on Monday morning and I believe only lasts that week. After which they will do a bit of family road tripping/camping along the beach. Please pray that the scan they are going to be doing to see if the treatment will be affective will be a positive result and that they can treat the DIPG tumour with it.

I received a text from Chelsea today that said Jubilee is struggling a bit more than she has since the radiation, so please take the time to stop and intercede in prayer on her behalf today! Also pray for protection over their trip and that they will be able to have an awesome family time together along the coast, filled with the peace of Christ.

“I, The Lord, am your healer.” – Exodus 15:26b

If you feel led to help their family financially, please click HERE to make a donation via card or check. Thank you so much!

April 2nd, 2013

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This past week has been quite busy, but in a very good way. Lots of family has come to visit and we had a wonderful Easter together at Crow Farm, remembering that Christ is risen and in Him is abundant life!

Jubilee has been returning to her normal self, no longer needing naps in the day and being more talkative, energetic and laughing a lot. She is also nearly finished with the steroids! Upon hearing how she is acting, the doctor at Children’s Hospital in Denver was very pleased and said that the radiation must’ve acted on the tumour as they hoped and that 6-12 months without major symptoms of the DIPG are very possible, which is a blessing. And we are continually praying for complete restoration and healing and that those symptoms never return. She has lost most of her hair where the radiation was applied and has been wearing colourful scarves and hats for the past few days. But it has been great to see her playing with her cousins and at the park or riding on the tag-a-long bike with Seth, which is a huge difference from when we first arrived.

Seth and Chelsea have spent hours on the phone this week talking to alternative specialists and researching possible treatments. Through lots of prayer and research they have narrowed it down massively and are praying about pursuing one or two avenues and would appreciate your ongoing prayers for wisdom and guidance from the Lord as to what path to take.

Chelsea’s parents, Mike and Cyndi, came on Thursday and stayed for the Easter Weekend, and Leah and Wes (Chelsea’s brother, wife and kids) also came on Friday just for a day. And with so many hands converging on them we had a ‘get practical stuff done’ day, which included burning irrigation ditches, thoroughly cleaning their house of dust and other allergens, running junk to the dump, fixing some plumbing etc. It was a very busy day, but a blessing also to have many hands to make light the work so that Seth and Chelsea wouldn’t have to worry about it and can just focus on Jubilee, their time together and her treatment. Chelsea also boiled eggs and we painted and dyed Easter Eggs in the evening all together.

On Saturday Seth and I took all four kids out for the day on bikes and to the parks in Paonia and had a really fun time picnicking and playing in the sun. Rachel and Chelsea headed to Hotchkiss and Delta to search out sugar free Easter treats as Jubie is completely off of sugar, and managed to find some great little goodies to fill the eggs.

The Burress family and Nana and Papa Weber all arrived Saturday night and for Easter Sunday we all greeted the morning with a sunrise service at and bonfire at Crow Farm. Some of the wonderful friends that they have in Paonia also came to share in the celebration of Christ’s resurrection and this time of Jubilee. It was a hard, but sweet time given the circumstances, and we know that Jesus is alive and holding precious Jubilee in His tender hands. Seth shared for a short time on the situation and what Jesus had been speaking to Him through this ordeal, and how He had made clear what is truly important. The bonfire he said was particularly symbolic to him as a picture of God burning away the petty things that distract to reveal the important things of life.

The rest of the day we spent together, sharing food and fellowship outside in the beautiful sunny day. After we ate, Seth, Mike, Jacob and I hid Easter eggs for the kids and they had a great time searching for them and playing with the little goodies in the eggs and eating the healthy treats that Chelsea and Rachel put in them.

The local Lutheran church held a donation/fundraiser breakfast for Easter and there have been multiple other fundraiser and support events around Paonia, including a pool tournament and a raffle at the local Subway. It has been very cool to be here and see first hand the amazing amount of support and care being given to their family during this time. Seth has mentioned many times how blown away they have been by the love and prayers from so many people and how it has encouraged them. Thank you all so much for your ongoing prayers and support for them, they are so thankful and blessed by the huge amount of people standing with them in the face of such a difficult fight.

Apart from the Easter weekend, we have all been respecting as much as possible their family time, only visiting midday, between 11-4 or so, so that they have time just as a family with Jubie and Isaac. They are taking each day as it comes, and it is so incredibly evident that Jesus is fully sustaining them. It is a huge blessing that Seth is not having to work through this time as well, and can spend as much time with his family as he can. Thank you all for your financial support that has made that possible. Enabling him to take this time with Jubilee, Chelsea and Isaac means more than you can ever know. Thank you so much and may God bless all of you in return for your generosity.

Jesus is truly alive, and that reality has hit all of us at a new level through this past month. He is comforting and sending His peace over Jubilee and her precious family, and for that we are so thankful. Your prayers and support have meant, and continue to mean, so very much to them and we are ever thankful for you as well.

If you feel directed to support Jubilee financially please click HERE. Thank you and God bless.

Update for March 11th

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Jubilee did great in radiation this morning but is adamant that she wants to go home to Paonia, which I think both Seth and Chelsea are also ready for. The radiation will be over on Friday, so please be praying for safe travels back to Paonia for them.

After the radiation, with most of the family having headed back to their homes, they spent the day as a family, just the four of them, playing games and having fun.

Jubilee is on steroids to keep the swelling and fluid under control around the DIPG tumour. They tend to make her hungry constantly and she can also get aggressive too. Once the radiation is finished they are going to wean her of of them, but in the meantime please pray against the aggressive side effects. The radiation will hopefully shrink the tumour and slow it’s progression down. It is the only known treatment for this type of Glioma tumour, but has only been shown to slow the DIPG down, not eliminate it. We continue to pray hard everyday for a miracle and hope you will join us.

Please continue to share Jubilee’s story with your churches and prayer chains, and please continue to lift her up in your thoughts and prayers!

Update for March 9th

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Denver got blanketed in snow and all of Chelsea’s brothers and their families made it without incident, so thank you all for your prayers! They all spent most of the day together with Jubilee, Seth, Chelsea and Isaac at the Ronald McDonald house. Jubilee did really well, but tires easily and had a long nap, but after which they all got to go bowling together. Two of Chelsea’s brothers have new little babies and Isaac and Jubilee both were very excited to meet them and loved seeing them. They all had a wonderful time with the family. Jubilee, Isaac and their cousins loved bowling and dancing to music at the bowling alley, eating french fries and just hanging out together. After the bowling Seth, Chelsea and Jubilee headed back to the Ronald house for the dinner, as Jubilee loves the dinners that they serve. Isaac stayed with the rest of the family to bowl and hang with his cousin Hunter.

The Ronald McDonald house in Aurora, very near the Children’s Hospital, is an amazing facility and is much like a nice hotel, catered towards children, and has really blessed them, especially Jubilee. The convenience alone of being able to stay so near the hospital has also been huge. The facility has large common areas for play and for spending family time together. Dinners are served by volunteers each night which keeps things low key and as stress free as possible.

Jubilee has been doing very well leading up to the radiology. They moved the port with the pick line to her heart for anesthesia to her upper arm with no trouble, and it makes the anesthetic take effect very quickly and with less pain. Everything is set for radiology on Monday.

Please keep Jubilee in your prayers. We are praying for God’s healing hand to be on Jubilee and peace and comfort on their family.

Update on Donations

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Just wanted to let you know that I have posted information for those that would like to contribute financially on the ‘Donate’ page, at the top of the site in the navigation bar. You can also click here to get there.

Thank you and God bless. I am also working on a new update too, which I will post very soon once I have gotten in touch with Seth and Chelsea & my parents.

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