May 29th, 2013 – Overdue Update!

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Apologies for the very overdue update! With being on opposite sides of the world, and them being on their road trip, home for a short time, then back out camping, Seth and I have been playing phone tag quite a bit! But I was able to speak with them the other day and actually Jubilee answered when I called so I got to have a good little chat.

Over the past weeks Seth and Chelsea have been reviewing and making decisions concerning treatments for Jubie and seeking the Lord for His direction as to where He will lead them next. We want to say a very heartfelt and grateful thank you for the continual prayers for Jubilee and her family. He is their greatest help and comfort and we know that through this entire situation He has been in control and leading them into every day, and will continue to do so.

I am not certain as to the day(23-25th), but they returned home to Paonia and though their road trip was amazing, it was nice for them to get back home for a bit. They have been re-connecting with their many friends and Isaac and Jubilee were both very excited to see their little  friends and enjoy some summer fun together. Seth caught up on the farm with the chores that needed doing, attacking the grass, tending the orchard and replacing their faulty faucet. A very dear friend of theirs, Josh, who has known Seth since he was about 15, also came to Crow Farm to spend some time with them too.

The road trip through California was awesome, and they really enjoyed visiting family and friends, and making new friends along the way. They stopped at Bethel, a church in Redding, CA as a good friend of theirs arranged for a group of prayer warriors to get together and pray over Jubilee the night they arrived and the next day. Jubile was her sweet self and was happy to get prayed for. The 8th grade class at the school which is part of the church also stopped, put their curriculum aside and all prayed wonderful prayers for her, all emphasizing life and more life! One thing that Seth and Chels really realized through their time and the prayers at Bethel was that they have been constantly surrounded by the thoughts of hopelessness and the prognosis of death surrounding this situation and how important it is to continue, steadfastly, praying the power of Christ’s life over Jubilee and keeping their focus on Him and His peace. It has certainly been hard to not despair when the medical community and the research seems to all lead to only “terminal”, “inoperable” and  “fatal”. We ask you to please continue to pray for Jubilee, and pray that Jubie may have life, and have it abundantly! (John 10:10b) We pray believing that no matter how many years God gives her that she will continue to be filled with His light and that this trial will be an incredible testimony to God’s everlasting goodness.

After they left Redding they headed up the coast towards Oregon, camping and touring along the way. They got to see some lighthouses and also spotted Gray whales breaching repeatedly just off the shore, which was a beautiful treat. They then headed to Newport, Oregon to meet with Seth’s parents, Todd & Nadine, for five days. The weather was rather inclement for most of the time, so they stayed indoors together, but were able to celebrate Mother’s Day together and took advantage of the down time to have a relaxed time. It was a big blessing to get to hug, hold and pray over Jubilee, fly kites, take a few walks and go swimming with both kids one day so that Seth and Chelsea could go on a bike ride together to connect.

Isaac and Jubilee both wanted to go back to Bethel on their way back to Paonia, which they did, and Jubilee was prayed for in a very busy, crowded prayer room but God also used that stop for a divine meeting with a dear couple whom they bumped into in the parking lot. The woman prays specifically for children with brain issues and her sweet, gentle prayers blessed them with their kindness and sincerity for Jubilee and their family. While they stayed in Redding, some dear old friends of our family, the Reinhartdts, showed them wonderful hospitality, taking them out on Lake Shasta in their boat for the afternoon and having them stay overnight. Jubie and Isaac were both delighted that they were allowed to drive the boat for a short time too! Leaving Redding they headed toward Yosemite and had a wonderful drive through the park there.

They know their entire trip was orchestrated by God and was exactly what they needed to be able to hear His voice and get away from the busyness of life and to just be a family together. They were led to Santa Barbara in hopes of an alternative treatment, but instead it turned to a journey filled with wonderful people being brought into their lives, took them to beautiful places of God’s creation, gave them time with family and friends and most importantly helped them to refocus on where God is leading them next.

As for Jubilee’s current condition: She is doing extremely well, which has surprised the doctors. The steroids have made her quite swollen and has caused her to gain a significant amount of weight which is primarily fluid retention. Due to the speed of the weight gain her muscles have not been able to grow to keep up, so she is prone to some muscle weakness. They have been encouraging her to have consistent activity, including biking, swimming and walking which helps to keep her from needing any special physical therapy. They have also been working to reduce the steroids, and have significantly, by using natural supplements to reduce swelling in her brain stem due to the radiation and/or DIPG tumor. So far the effect has been good and they are hoping to bring her completely off of the steroids soon. They have found that the symptoms she has shown periodically, such as imbalance or inability to focus her eyes, is due to the necrosis from the radiation and not necessarily from any growth of the DIPG.

Once they had arrived home Seth called Children’s Hospital in Denver and spoke to the oncologist about the MRI they had scheduled for her, and when Seth explained Jubie’s zest for life and how well she is currently doing the doctor said that it was not necessary to get the MRI now and also assured they that if the tumor was growing her symtoms would be much more obvious and would be worsening much quicker. He believes, from experience, that the necrosis (damage from the radiation) will continue to heal and not be permanent. Please pray for that to be so just as much as for the tumor to never return! We are so marvellously thankful that the tumor does not seem to be growing at this stage!

Seth and Chelsea researched a new drug called Avastin, and through their research found that they do not believe it would be best for her as it’s side effects can be severe and extremely harmful, destroying any quality of life. They have connections with a person in Durango, CO that has helped many cancer patients through alternative treatments and nutritional diet and they are going to be meeting him at the end of this week. Please pray for wisdom and guidance as they meet and discuss further options, that the Lord would lead their way!

Sweet Jubie is continuing with her extremely healthy diet and is amazingly compliant when it comes to taking the natural remedies and drinking her green juice. She has maintained her wonderful attitude and prays daily that God would heal her “owie” in her brain and talks excitedly about turning five and when she grows up. Within the last few days at home she has enjoyed water fights and bike rides, which has shown a healthy energy level and joy in just living. Please don’t cease to pray for her, for life, peace and the perfect will of Jesus. Thank you!

If you would like to leave a message for Seth and Chelsea or Jubie, please respond below via the comments section as the incoming comments/messages do get forwarded to them and I know they appreciate your written thoughts and prayers very much.

If you feel God calling you to donate to help support Jubilee and her family financially, please click HERE. 100% of your donation goes directly to them. Any amount will help them through this trial, providing for them to spend as much time together as a family as possible. We are so incredibly thankful for your donations and your continual prayers for Jubilee Grace. Thank you and God bless. 

April 12th, 2013 – Update

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Just a very short update today.

Seth, Chelsea, Isaac and Jubilee all headed out safely and are going to be arriving in Santa Barbara tonight. Accommodation has graciously been provided for through a man at Calvary Chapel Santa Barbara, in the form of a rental home that was vacant for the dates they needed, praise God!

Jubilee’s treatment begins on Monday morning and I believe only lasts that week. After which they will do a bit of family road tripping/camping along the beach. Please pray that the scan they are going to be doing to see if the treatment will be affective will be a positive result and that they can treat the DIPG tumour with it.

I received a text from Chelsea today that said Jubilee is struggling a bit more than she has since the radiation, so please take the time to stop and intercede in prayer on her behalf today! Also pray for protection over their trip and that they will be able to have an awesome family time together along the coast, filled with the peace of Christ.

“I, The Lord, am your healer.” – Exodus 15:26b

If you feel led to help their family financially, please click HERE to make a donation via card or check. Thank you so much!

March 22, 2013

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Today was a tough one. Please continue to pray for Jubilee and her family as they face this situation. It is solely by Jesus’s power and peace that they can walk in hope each day. Continue to pray His mighty protection over them and His awesome healing for Jubilee.

Jubilee did alright today, but was somewhat withdrawn and tired. Please pray for her to continue to improve as the steroid doses get lower. God’s hand is on her and we ask for fervent Prayer over her every minute of the day. We met only briefly at a friend’s house who was babysitting baby piglets, to let the kids see them. Then Chelsea took Jubilee back home and Seth and Jubie spent time together on a daddy/daughter date.

Please also be praying for Seth as he had an incredibly hard day of severe allergies, which are literally the last thing he needs to be dealing with right now. He has a long history of poor sinuses and nasty allergies, so please lift that up in prayer as well.

Your prayers are so appreciated and effective. Please continue to keep fervently praying for Jubilee, Seth, Chelsea and Isaac.

Update for March 13-15th, 2013

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Apologies for the delayed update! My wife
and I and our two children have been travelling from England to the
US and are now settling into the time change and fighting jet lag.
Praise Jesus our flights went awesome, with our little girls sleeping well and with no crying or ear pain! Answer to
prayer!

——–
Jubilee has had trouble sleeping so was very tired in the morning but still wanted to go to the zoo again. So Seth and Chelsea took her and Isaac again and though she slept for part of it, she really had a fun time and so did Isaac. Unfortunately Isaac came down with a stomach bug, which meant he had to go back with Chelsea’s parents to their hotel for the night as Jubilee is very susceptible to viruses while fighting the DIPG and undergoing radiation. The following night he still was not 100%, so stayed with Todd and Nadine. Jubilee was showing signs of it as well the morning of the 14th, but woke up this morning well. Isaac and Chelsea are both well too. Seth did not get the stomach bug, but has been fighting a nasty sinus infection, so please pray for that to go away and that health will be restored! Jubilee’s radiation treatment has gone well and she had her last session this morning and they are heading back home after a final meeting with the doctors in Denver. They are really looking forward to getting Jubilee on a good, nutritious diet and using natural remedies to build up her health and boost her immune system. Jubilee is also very much looking forward to finally being home. Please pray for Jubilee that with her radiation treatment complete, coupled with
being home and having a very healthy, natural diet etc, that she would regain her energy and health and be completely herself, and that that would be permanent if that is God’s plan. Also pray for protection for their family from any further viruses etc, and that they are able to stay together and enjoying their days without worrying about any sickness. We are constantly reminded of the words spoken to Jubilee by the Lord, “Don’t be afraid” and “I love you and your family so much”. He is reassuring, loving and sustaining Jubilee, and us, and we know He has a plan for this situation. God bless you all and thank you for your continued prayers for little Jubilee! They do not go unnoticed and are a huge blessing. We also wanted to thank those of you who have donated to help during this very difficult time. Your donations have been amazing and we are amazed at the blessings people have shared with this beautiful family. Rachel, myself and our girls will be getting to Paonia on Tuesday and Todd and Nadine are heading over to Paonia as well. Some very wonderful friends have offered their homes up for us to lodge in for the duration of our stay, which is a huge blessing! I will post another update as soon as I have more info.
God bless.

Update for March 9th

Jubilee

Denver got blanketed in snow and all of Chelsea’s brothers and their families made it without incident, so thank you all for your prayers! They all spent most of the day together with Jubilee, Seth, Chelsea and Isaac at the Ronald McDonald house. Jubilee did really well, but tires easily and had a long nap, but after which they all got to go bowling together. Two of Chelsea’s brothers have new little babies and Isaac and Jubilee both were very excited to meet them and loved seeing them. They all had a wonderful time with the family. Jubilee, Isaac and their cousins loved bowling and dancing to music at the bowling alley, eating french fries and just hanging out together. After the bowling Seth, Chelsea and Jubilee headed back to the Ronald house for the dinner, as Jubilee loves the dinners that they serve. Isaac stayed with the rest of the family to bowl and hang with his cousin Hunter.

The Ronald McDonald house in Aurora, very near the Children’s Hospital, is an amazing facility and is much like a nice hotel, catered towards children, and has really blessed them, especially Jubilee. The convenience alone of being able to stay so near the hospital has also been huge. The facility has large common areas for play and for spending family time together. Dinners are served by volunteers each night which keeps things low key and as stress free as possible.

Jubilee has been doing very well leading up to the radiology. They moved the port with the pick line to her heart for anesthesia to her upper arm with no trouble, and it makes the anesthetic take effect very quickly and with less pain. Everything is set for radiology on Monday.

Please keep Jubilee in your prayers. We are praying for God’s healing hand to be on Jubilee and peace and comfort on their family.

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