URGENT UPDATE – 30th June, 2013

I have received another bit of info from Nadine as she had a call from Seth on their way back to Paonia.

Jubie’s symptoms have worsened significantly and she is now unable to drink, eat or move. She also can’t speak. It seems as though her bodily systems are simply shutting down.

Please, please continue to pray hard for this precious little one and her family as they face this incredibly difficult chapter. God is in control and your prayers are much desired and needed for beautiful Jubilee Grace.

Thank you all for your fervent prayers and support!

URGENT Update – June 29, 2013

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I just woke up to a phone call from Nadine with some news from Seth.

Jubilee woke up this morning and has paralysis in her right side, rendering her unable to walk, or move very much at all and also is having a lot of trouble speaking.

They still aren’t sure if it is the necrosis from the radiation or growth from the DIPG tumor, and finding out would involve another MRI which doesn’t even have a high likelihood of revealing what exactly is causing the increased symptoms.

Please, please take the time today to lift Jubilee, and her family, up in prayer. God is sovereign and she is in His hands and perfect will, and we continue to ask the Lord for her healing and recovery. Please pray for strength for their family and reassurance of God’s grace, peace, mercy and love.

Please share with your family and friends and let your church prayer chains know too.

Thank you for your continued prayers! We are so grateful and are looking to God, full of hope.

– Romans 8:23-31 –

Update – June 26th, 2013

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I had the chance to catch up with Seth and Chelsea for a bit and wanted to give an update on Jubie currently.

So far the worsening of her symptoms, whether due to the necrosis or any tumor growth, seems to have stopped, which is great! Praise God! As of now Jubilee cannot walk as her balance is very poor and she has a lack of control over her movements, and she has had trouble with here eyes and she often must crawl from one place to the next. But her attitude is cheerful and happy and she is full of energy as well!

Todd and Nadine bought her a tricycle which, since it does not require balancing, has enabled her to be very mobile and aid in exercising to fight the affects of the steroids, and she loves to zoom around and ride it all over. She can’t walk but she certainly can ride, so it has been immensely helpful!

They are continuing to seek God as to what possible options there are in the realm of treatments. Currently they are driving to nearby Farmington to meet with a lovely Christian woman who is a reflexologist. The foot zoning reflexology treats the nerve endings in the body and the visits have had good results. Her eyes are looking better and they are only a 2 treatments into the course of 7 visits, so Lord willing it will be very helpful. I will update as soon as I know or hear more.

They also said that the community of friends and family has continued to be such a huge blessing and help to them and they are so thankful for your ongoing prayers. Many of their friends in Paonia have been dropping by to pray for Jubie as well which has been a very encouraging blessing as well.

One thing that could really use prayer as well is that Seth, Chelsea and Isaac all have been struggling with very severe allergies/hayfever which alone can impede daily life, not to mention coupled with the current situation. Please pray that the Lord would provide relief for them!

They are continuing to take each day at a time, starting every morning with taking communion together and committing their day ahead to Jesus. Seth said that God has been teaching them to enjoy each day and not to be anxious for tomorrow. It is certainly challenging and has been fraught with tears at times, but God’s peace has been comforting and protecting them throughout. Your prayers have been a huge encouraging factor too, and we are all so very thankful for everyone of them!

If you would like to donate to help support Jubilee please click HERE. 100% of your donation goes directly to supporting her and her family as they battle this DIPG tumor. Thank you so much and may God bless you.

Jubie getting around on her tricycle.Image

June 11th, 2013 – Update

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Got to speak with Chelsea and Seth recently and have gotten an update on the situation and how Jubie is doing.

First of all she is off of the steroids currently, which is good, and she also has been in very high spirits, with a zealous joy despite the circumstance and lots of energy. Seth told me that when they ask her how her eyes, or anything, is feeling it’s either “good” or “great”, and if anything is bothering her she just sweetly replies, “I don’t want to tell you” or will change the subject to something happy. So despite not necessarily doing physically better, she is being very upbeat and absolutely joy filled.

Right now they are trying to determine whether the symptoms, which have been worsening gradually, are due to the DIPG tumor or from the radiation’s side effect of necrosis, as the symptoms can be very similar. As of when I spoke with them Jubie is having a hard time maintaining her balance and her eyes have been in pain and had trouble focusing and blinking. Due to her lack of balance they have not been able to get out and hike or bike ride, but they have found that she absolutely adores swimming and they have been going to the Glenwood Springs hot springs where she hops into her little inner tube and kicks/paddles all over the pool for hours. So that has been a great thing to fight the lingering side effects of the steroids, as she can easily get lots of exercise in the pool and not have to worry about balance.

Please keep praying for enduring peace and for God’s healing hands upon Jubilee and her family. Chels told me that it has been a tough week for them all seeing her balance fail, but that Jubie’s joy has also been such a blessing, challenge and inspiration. They are continuing to eat very healthy, raw, cancer fighting foods and giving Jubie natural remedies to fight swelling and the cancer. The people and prayers surrounding them have also been a huge encouragement and source of strength for them. Thank you all so much for your support and love, it is of more value than we can ever express!

I will continue to try to keep you all updated as often as possible and as quickly as I can. Thank you for your encouraging comments and most importantly your continued prayers for Jubilee Grace.

If you feel called to donate to Jubilee please click HERE. 100% of your donation goes directly to supporting them through this time and the costs involved. Thank you so much and may God richly bless you!

 

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