April 23, 2013 – California Update

Jubie

First off, I was made aware that some of you have been emailing, asking how the Gallium Treatment at the Issels Clinic went, and wanted to refer you to a previous post, on April 18th, so that you can catch up with what went on last week. Please click HERE to read that post if you missed it. 

Jubilee is doing better since waking with double vision, praise the Lord! They have had to place her back on steroids to help alleviate any possible swelling from the DIPG, but were also informed that the swelling may possibly be due to the radiation treatment and not tumour growth. She has started being more sleepy again, taking two naps a day, which also could be part of her body dealing with the radiation.

Since Jubilee was improved from her double vision on the 19th, they decided to go ahead with the plans to drive to San Diego to meet with the Make-A-Wish representative about fulfilling some of Jubilee’s dreams around the San Diego area, and are also providing for their accommodation. They were also able to go to Lego Land on their own, which was one thing that Isaac dreamed of getting to do, as Legos are his favourite toy, and they all enjoyed it a lot. The weather has been stereotypically perfect for California and they have been blessed to spend time together resting and taking it a day at a time. The hotel which Make-A-Wish provided also has a pool with some slides which Isaac has nearly worn out! Their plan was to go to Sea World today and spend the next day resting, as Jubilee will probably be quite tired after so much activity.

Jubilee also loves Minnie Mouse, so at the end of this week they will be driving to LA to meet Chelsea’s parents, Mike and Cyndi, to spend a day at Disneyland together. Jubie and Isaac have never been to Disneyland, so are really looking forward to it. After that they are planning on remaining on the road, camping and making the most of their time, as long as Jubilee’s health holds and she feels well enough. They have been offered places to stay in both Santa Barbara and Malibu by sweet friends, so will probably head north along the coastal route and possibly up into Oregon. They wanted to thank everyone who has been supporting and helping in making this time possible for them to just be a family, pray, live, love and laugh together. It has truly been a massive blessing amidst such a difficult chapter.

They are continuing in prayer about the possible other treatments that the doctors at the Issels Clinic proposed, to see if they feel God’s leading in that direction. Please join in their prayers and pray that the Lord would guide them and give them wisdom in their choice. Chemo is certainly not an option, as it has been clinically shown to have next to no effect on DIPG tumours, not extending any child’s life who’s tried it, but in turn severely harming their quality of life due to it’s harsh and toxic radioactive nature. Children with DIPG tumours seldom live longer than a year after diagnosis, and the rate of survivability is literally 0% as there is no known cure. So please, please continue to pray for healing over Jubilee, whether by a miraculous work of Jesus, or through an alternative treatment, if that is God’s will. We are also mindful and so thankful for the promise of eternity with God, through Jesus Christ, where “He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore (Revelation 21:4)” if He chooses to take Jubilee home.

Thanks again so much for your continued prayers for Jubilee Grace! It means so much to us and we know the Lord hears the prayers of His people.

If you would like to donate to help Jubilee please click HERE. Thanks to everyone who has financially gifted to them, it has been a huge help in allowing them to take advantage of everyday, to focus on Jubilee and face the situation as a family. God bless you!

April 19th, 2013 – Urgent Update

Jubilee woke up this morning seeing double again, which could be a bad sign of accelerated regrowth in the tumour. Please take the time today to stop and pray for her! They are going to call their doctor, Dr. Foreman, at Children’s Hospital in Denver to see if they need to place her back on steroids.

Please, please pray today for Jubie, and for wisdom and peace from the Lord!

April 18th, 2013 – Update

Jubilee

The past week in Santa Barbara has been a busy time for Seth, Chelsea, Isaac and Jubilee. They have run the course with the Gallium Treatment at the Issels Clinic in Santa Barbara. The clinic was very nice to work with, as were the doctors. They injected the gallium on Monday followed by scans on Tuesday and Wednesday. But the scans returned negative with the gallium not gathering at any one location, which was surprising, as gallium metabolises much like iron and is normally, among other tumours, drawn to the cancer and gathers there. This could mean that the DIPG was significantly reduced in size by the radiation, but the doctors were unsure as to why exactly the gallium didn’t show up as pooling around her brain stem, though this was the first time gallium had been used on a DIPG tumour. The doctors did suggest perhaps having another scan at a later date, or the option of the gallium medicine if her symtoms increase. They also suggested a host of other possible treatments, but with none of them having any clinical evidence of  being effective against DIPG. God is the ultimate physician and we continue to pray for His perfect will and her complete healing.

Jubilee has been doing well, though her eyes are still having trouble blinking and tracking well. They have spoken to the doctors about intervening again with steroids, to get advice on when or if to use them. Regardless, she has been very happy and spirited, though tires quickly. They have been able to get to the beach everyday and Jubilee has absolutely loved it. They also took their bikes and have been taking advantage of the beautiful bike trails along the coast, riding their tandem with Jubie on the tag-a-long bike and Isaac on his own bike. They have also met some other families that have faced similar circumstances and have made some wonderful friends. Their host, a man named Faro, has been a huge blessing too.

Chelsea wrote that though the tests at the Issels clinic with the gallium treatment did not come out as they had hoped, they are finding even greater peace knowing that Jesus is fully in control, saying, “There is so little we can do, but so much He can do. Trusting Him brings us peace. No one cares more for her than He does.“. She also wrote that the time in Santa Barbara has been incredibly good for their family and spirits, spending time together and seeking God. And regardless of the clinic and gallium tests, the trip has been worth it just to see Jubilee carefree and playing on the beach, giggling in the sand and sun. They are embracing every moment with Jubilee that they can and God has been making this time easier to bear by His awesome presence and peace.

The Make-A-Wish Foundation is also going to be taking them to San Diego to go to Sea World and some other activities. Please pray that Jubilee will have the energy and stamina to enjoy the day(s) out and continues to feel good and that their time is very blessed.

Please continue in prayer for Jubilee, and share her situation with prayer chains and churches. We are so appreciative of your love and support and thank everyone of you!

If you feel directed to financially support Jubilee and her family, please click HERE to donate via debit/credit or check. Every bit helps and 100% of all donations goes directly to Jubilee. May God richly bless you in return! Thank you. 

April 12th, 2013 – Update

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Just a very short update today.

Seth, Chelsea, Isaac and Jubilee all headed out safely and are going to be arriving in Santa Barbara tonight. Accommodation has graciously been provided for through a man at Calvary Chapel Santa Barbara, in the form of a rental home that was vacant for the dates they needed, praise God!

Jubilee’s treatment begins on Monday morning and I believe only lasts that week. After which they will do a bit of family road tripping/camping along the beach. Please pray that the scan they are going to be doing to see if the treatment will be affective will be a positive result and that they can treat the DIPG tumour with it.

I received a text from Chelsea today that said Jubilee is struggling a bit more than she has since the radiation, so please take the time to stop and intercede in prayer on her behalf today! Also pray for protection over their trip and that they will be able to have an awesome family time together along the coast, filled with the peace of Christ.

“I, The Lord, am your healer.” – Exodus 15:26b

If you feel led to help their family financially, please click HERE to make a donation via card or check. Thank you so much!

April 9th, 2013 – This Past Week

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This past week has held a lot. A lot of research, phone calls, connections, plans and prayers. Seth and Chelsea are feeling God’s leading and have settled on some plans for Jubilee and their family in the coming weeks.

After Easter everyone except my family (Rachel, Libby, Adi and myself) and my parents (Todd and Nadine) headed back to their homes and Seth and Chelsea got back on the confusing journey of delving into and sorting through the plethora of cancer research and treatments. One very apparent thing is that DIPG cancers/tumors are so rare that they have received very little research with basically zero progress in treatments or survivability for many years. There are a few alternative options that have been shown to attack cancers effectively and if used on Jubilee would be the first time they have been tried against DIPG. Which could be a breakthrough in fighting DIPG, but also carries the possibility of them being ineffective. But the very positive side of the treatments that they are looking at is that they are simple, non-invasive, nor riddled with horrendous side effects which would mar Jubilee’s quality of life. Seth and Chelsea have felt the Lord leading them to an alternative cancer treatment center in California, near Santa Barbara, and continue, as always to be so thankful for the massive amount of prayers for Jubilee and their family that have been relentlessly put before God by so many amazing people. Please continue to pray for them, for direction and clarity in their path and for great wisdom and peace that passes all understanding.

Right now, with the decision to head to California, they are packing and readying to take a family road trip, leaving the 10th. Their intent is to head to Santa Barbara for Jubie’s treatment, which should only last a few days, and then to make the rest of the trip, however long it lasts and whatever direction it takes them, to celebrate together as a family and enjoy every moment they have. One of Jubilee’s greatest wishes was to go to the beach, so they plan on camping on or very near the coast for at least awhile and making wonderful memories together.

Obviously their trip and its duration depends on Jubilee’s condition, which since the radiation treatment, has been quite good. Today I spent the day with Seth running to a doctor appointment in Ridgeway, followed by other last minute errands in Montrose and Delta. We got to take Jubilee and Liberty with us and we had an awesome time all together, as well as taking our little girls out to a Chinese place for lunch, which was priceless. Jubilee is her sweet, beautiful self and laughed and smiled all day, but Seth noticed that she tended to have a bit of trouble blinking and would sometimes look sideways when walking to keep herself straight, which he said reinforces all the more that they need to go, do the treatment and be a family as much as possible. Please don’t cease to be praying for Jubilee and her family as they head out on this trip. Pray against confusion and stress. That they would all be unified and covered by God’s peace and protection and that this treatment, Lord willing, would be positive and that it will effectively combat and destroy Jubilee’s tumor.

We also wanted to say a HUGE thank you to all of those who were out and participated in the Ride for Jubilee in Colorado Springs! The day after the event Mike and Leah, who were the coordinators, made a quick trip over to Paonia to see Jubie and they gave us a run down of how well it all went. We want to thank you all for your participation and the funds that were raised to help with the expenses of Jubilee’s upcoming treatment. Everyone of you who was involved at any level directly impacted, and helped, Jubilee and her family massively. We cannot thank you enough!

Please continue to share Jubilee’s story and keep her in your prayers, on prayer chains and let your churches know. And remember, “pray one for another, that ye may be healed. The effectual fervent prayer of a righteous man available much.” (James 5:16b)

The photo at the top of this post was taken by Liberty while we had our Chinese lunch (photo below), and it also was a pretty frigid winter day today, leaving Paonia with about 4-5 inches of snow, so we had a bit of a snowball fight while running errands. 🙂

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If you feel directed to donate financially to help offset the expenses that their family is facing please click HERE to make a contribution. We are extremely grateful for your support and any amount will help Jubilee and her family face the future. 100% of all contributions goes directly to them. Thank you so much and may God bless you.

Motorcycle Ride, Silent Auction and BBQ for Jubilee!

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This is an awesome fundraiser/event that our very sweet cousin Leah and her boyfriend Mike have been promoting and advertising in Colorado Springs. It has been gathering a lot of participants and last I heard had garnered more than twice the amount of people than expected and is continuing to grow! It’ll be a great time with a large gathering of bikers rallying and taking part, a silent auction (with expert tattoo work up or grabs, so I hear) and also a large BBQ as the finale! And you don’t necessarily need to be a biker to enjoy the day!

If you are interested in participating and helping to raise support for sweet Jubilee please click the image above to read the details and get involved. ALL of the proceeds are going to be going straight to supporting Jubilee and her family!

We cannot thank Leah and Mike enough for their preparation and hard work in making this event happen, as well as the others who have organised fundraising events for Jubilee on any scale. You are so appreciated and it has been a huge blessing! Thanks so much and I hope those of you who are nearby will join in and have a fun day out to benefit Jubie and her family!

April 2nd, 2013

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This past week has been quite busy, but in a very good way. Lots of family has come to visit and we had a wonderful Easter together at Crow Farm, remembering that Christ is risen and in Him is abundant life!

Jubilee has been returning to her normal self, no longer needing naps in the day and being more talkative, energetic and laughing a lot. She is also nearly finished with the steroids! Upon hearing how she is acting, the doctor at Children’s Hospital in Denver was very pleased and said that the radiation must’ve acted on the tumour as they hoped and that 6-12 months without major symptoms of the DIPG are very possible, which is a blessing. And we are continually praying for complete restoration and healing and that those symptoms never return. She has lost most of her hair where the radiation was applied and has been wearing colourful scarves and hats for the past few days. But it has been great to see her playing with her cousins and at the park or riding on the tag-a-long bike with Seth, which is a huge difference from when we first arrived.

Seth and Chelsea have spent hours on the phone this week talking to alternative specialists and researching possible treatments. Through lots of prayer and research they have narrowed it down massively and are praying about pursuing one or two avenues and would appreciate your ongoing prayers for wisdom and guidance from the Lord as to what path to take.

Chelsea’s parents, Mike and Cyndi, came on Thursday and stayed for the Easter Weekend, and Leah and Wes (Chelsea’s brother, wife and kids) also came on Friday just for a day. And with so many hands converging on them we had a ‘get practical stuff done’ day, which included burning irrigation ditches, thoroughly cleaning their house of dust and other allergens, running junk to the dump, fixing some plumbing etc. It was a very busy day, but a blessing also to have many hands to make light the work so that Seth and Chelsea wouldn’t have to worry about it and can just focus on Jubilee, their time together and her treatment. Chelsea also boiled eggs and we painted and dyed Easter Eggs in the evening all together.

On Saturday Seth and I took all four kids out for the day on bikes and to the parks in Paonia and had a really fun time picnicking and playing in the sun. Rachel and Chelsea headed to Hotchkiss and Delta to search out sugar free Easter treats as Jubie is completely off of sugar, and managed to find some great little goodies to fill the eggs.

The Burress family and Nana and Papa Weber all arrived Saturday night and for Easter Sunday we all greeted the morning with a sunrise service at and bonfire at Crow Farm. Some of the wonderful friends that they have in Paonia also came to share in the celebration of Christ’s resurrection and this time of Jubilee. It was a hard, but sweet time given the circumstances, and we know that Jesus is alive and holding precious Jubilee in His tender hands. Seth shared for a short time on the situation and what Jesus had been speaking to Him through this ordeal, and how He had made clear what is truly important. The bonfire he said was particularly symbolic to him as a picture of God burning away the petty things that distract to reveal the important things of life.

The rest of the day we spent together, sharing food and fellowship outside in the beautiful sunny day. After we ate, Seth, Mike, Jacob and I hid Easter eggs for the kids and they had a great time searching for them and playing with the little goodies in the eggs and eating the healthy treats that Chelsea and Rachel put in them.

The local Lutheran church held a donation/fundraiser breakfast for Easter and there have been multiple other fundraiser and support events around Paonia, including a pool tournament and a raffle at the local Subway. It has been very cool to be here and see first hand the amazing amount of support and care being given to their family during this time. Seth has mentioned many times how blown away they have been by the love and prayers from so many people and how it has encouraged them. Thank you all so much for your ongoing prayers and support for them, they are so thankful and blessed by the huge amount of people standing with them in the face of such a difficult fight.

Apart from the Easter weekend, we have all been respecting as much as possible their family time, only visiting midday, between 11-4 or so, so that they have time just as a family with Jubie and Isaac. They are taking each day as it comes, and it is so incredibly evident that Jesus is fully sustaining them. It is a huge blessing that Seth is not having to work through this time as well, and can spend as much time with his family as he can. Thank you all for your financial support that has made that possible. Enabling him to take this time with Jubilee, Chelsea and Isaac means more than you can ever know. Thank you so much and may God bless all of you in return for your generosity.

Jesus is truly alive, and that reality has hit all of us at a new level through this past month. He is comforting and sending His peace over Jubilee and her precious family, and for that we are so thankful. Your prayers and support have meant, and continue to mean, so very much to them and we are ever thankful for you as well.

If you feel directed to support Jubilee financially please click HERE. Thank you and God bless.

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