First off, I was made aware that some of you have been emailing, asking how the Gallium Treatment at the Issels Clinic went, and wanted to refer you to a previous post, on April 18th, so that you can catch up with what went on last week. Please click HERE to read that post if you missed it.
Jubilee is doing better since waking with double vision, praise the Lord! They have had to place her back on steroids to help alleviate any possible swelling from the DIPG, but were also informed that the swelling may possibly be due to the radiation treatment and not tumour growth. She has started being more sleepy again, taking two naps a day, which also could be part of her body dealing with the radiation.
Since Jubilee was improved from her double vision on the 19th, they decided to go ahead with the plans to drive to San Diego to meet with the Make-A-Wish representative about fulfilling some of Jubilee’s dreams around the San Diego area, and are also providing for their accommodation. They were also able to go to Lego Land on their own, which was one thing that Isaac dreamed of getting to do, as Legos are his favourite toy, and they all enjoyed it a lot. The weather has been stereotypically perfect for California and they have been blessed to spend time together resting and taking it a day at a time. The hotel which Make-A-Wish provided also has a pool with some slides which Isaac has nearly worn out! Their plan was to go to Sea World today and spend the next day resting, as Jubilee will probably be quite tired after so much activity.
Jubilee also loves Minnie Mouse, so at the end of this week they will be driving to LA to meet Chelsea’s parents, Mike and Cyndi, to spend a day at Disneyland together. Jubie and Isaac have never been to Disneyland, so are really looking forward to it. After that they are planning on remaining on the road, camping and making the most of their time, as long as Jubilee’s health holds and she feels well enough. They have been offered places to stay in both Santa Barbara and Malibu by sweet friends, so will probably head north along the coastal route and possibly up into Oregon. They wanted to thank everyone who has been supporting and helping in making this time possible for them to just be a family, pray, live, love and laugh together. It has truly been a massive blessing amidst such a difficult chapter.
They are continuing in prayer about the possible other treatments that the doctors at the Issels Clinic proposed, to see if they feel God’s leading in that direction. Please join in their prayers and pray that the Lord would guide them and give them wisdom in their choice. Chemo is certainly not an option, as it has been clinically shown to have next to no effect on DIPG tumours, not extending any child’s life who’s tried it, but in turn severely harming their quality of life due to it’s harsh and toxic radioactive nature. Children with DIPG tumours seldom live longer than a year after diagnosis, and the rate of survivability is literally 0% as there is no known cure. So please, please continue to pray for healing over Jubilee, whether by a miraculous work of Jesus, or through an alternative treatment, if that is God’s will. We are also mindful and so thankful for the promise of eternity with God, through Jesus Christ, where “He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore (Revelation 21:4)” if He chooses to take Jubilee home.
Thanks again so much for your continued prayers for Jubilee Grace! It means so much to us and we know the Lord hears the prayers of His people.
If you would like to donate to help Jubilee please click HERE. Thanks to everyone who has financially gifted to them, it has been a huge help in allowing them to take advantage of everyday, to focus on Jubilee and face the situation as a family. God bless you!